Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi everyone, hope you all had a good weekend. How are you all doing at the moment? I'm starting my radiotherapy on Wednesday and will be so pleased to get it out of the way. My tummy wound is healing, albeit it slowly, hoping it will be healed by Christmas. Now all Christmas shopping is finished, thinking of starting the wrapping today. I usually have everyone to me at Christmas, but having a break this year and going to my daughter's. It will make a lovely change for me. What are you all doing over the festive period?

  • HI Pippin,

    I am glad to hear that your wound is finally beginning to heal, albeit slowly. I had everyone to us for Christmas and New Year, but have now decided that it's time for the younger members of the family to pick up the cudgel. We are going to my son and his family, which we are looking forward to,

    It'll be great to get to your radiotherapy, at long last and I hope that it all goes well.

    Regards,

    Jolamine xx

  • Hi Carol, it's sounds like you have settled back into a normal routine really well. That's so great to hear! Your hair sounds fab, I can't wait to get back to putting a colour on mine again, maybe in the new year. How long have you waited before doing it? It's great that you're feeling fitter and now getting your strength back. Hopefully we'll all have a better and healthier year next year. Have a great tome at your Christmas party tomorrow, I'm sure you'll have a great time. Enjoy Christmas in Sussex with all the family and the horse racing on Boxing day too xx

  • Thanks Pippin.  It's so good to feel relatively 'normal' again!  Though I have to say, if I stay up much after 9pm, I do struggle!!  I'm hoping that will get better as time goes on (and as we move into lighter evenings etc).  

    My last chemo was in March, so I guess I waited about 9 months before I had my hair coloured.  The recommendation is at least 6 months.  I was a bit nervous, but it's all ok.  Though my pillow case is covered in red and brown dye!  That's in the wash with the rest of the bedding as we speak, so I'm hoping it comes out ...  

    I am looking forward to getting all dressed up tonight.  I can't remember the last time I did that.  I won't be drinking though as I'll be driving, but just being out with friends and celebrating a Christmas I wasn't sure I'd see, will be amazing.  Shame I have a 3pm meeting to put a damper on today's excitement lol. 

    Enjoy your weekend and I'm sure we will all speak again before Christmas. But if not, have a wonderful time and here's to a happy and healthy 2025 for us all!

  • I can feel all the positively coming through when reading uourpist, which is amazing. Thanks for info on hair dye, think I'll give I a little while longer. Have a fab time tonight! Xx

  • Hi Pippin,

    Hubby has a host of medical problems - Quadruple by-pass 30 years ago, strokes, TIAs, Parkinson's Disease, Diabetes, Bowen's Disease, Heart Failure, Squamous Cell Carcinoma and Vascular Dementia to name but a few. His Dementia is progressing faster than we anticipated and he doesn't seem too worried about the wait - I think that I'm more concerned than he is! He has also had problems with continuous infections for the past year and is due to have surgery to try and remedy this shortly.

    I'm glad to hear that you have a scheduled phone call with oncology for 23rd December and I hope that you can get things sorted out then.

    Regards,

    Jolamine xx

  • That was meant to say your post lol!!!

  • Hi Jolamine, sorry to hear how many issues your husband is having to deal with, it must be so difficult for you both. I hope things improve in the coming year. Xx

  • Hi Greeny80 I just wanted to know what are the injections called that you are taking. I would also like to say that  I have got through my cancer journey is reading all you ladies remarkable journeys. I had chemo and a Lumpectomy with an axillary clearance which came back all clear. Now I am waiting for radiotherapy and then it will be hormone treatment. 

  • Hi Nedb, welcome to our little group  so glad we have helped you through your journey so far. I am currently on my way to my 13th radiotherapy session and finish on Christmas eve. It's all gone well, I just find the journey a bit tiring and the early morning starts. I have also recently started letrazole, which is a hormone blocker. Wish you well on the next phase of your journey. Have an lovely Christmas. Xx

  • Hi Pippin24, I'm so glad to hear that you are nearly finished with your radiotherapy. I was given an option after radiotherapy if I wanted to take Tamoxifen or Anastrozole and injections. I don't know which one I want to go for. 

Reply Children
  • Hi everyone. Just wanted to hop on quickly to wish everyone a Merry Christmas.  I hope everyone has a great time and here’s to a healthier 2025 for us all. 

    Merry Christmas! xx

  • Merry Christmas to you all!

    thank you for getting me through 2024….honestly this forum and thread has been an absolute life saver this year from diagnosis to where I am today… and you have all totally helped get me through so I just wanted to say a HUGE thank you!! It’s been amazing on here.

    I hope you all have a wonderful Christmas and wishing you a very happy and healthy 2025!

    xx