Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi everyone, I hope you've all had a good weekend, despite the horrible weather. 

    I attended the radiotherapy hospital and had my ct scan and markings.They initially gave me a start date of the 5th of December, with the last one being boxing day. As I'm at my daughter's for Christmas, I wouldn't be able to do boxing day. When I phoned,  they agreed to start a day earlier, so will now finish on Christmas eve. I'm a little concerned about the journey, as a lot of appointments are before 9am, it will mean travelling on the m25 during rush hour, which isn't ideal.

    My wound is now apparently healing too quickly, so dressings have changed again. They are still quite happy with how it's going, will just be a slow process. 

    Have  finished all my Christmas shopping, so now won't have to worry about it, while going through radiotherapy.

    How are you all doing?

Reply
  • Hi everyone, I hope you've all had a good weekend, despite the horrible weather. 

    I attended the radiotherapy hospital and had my ct scan and markings.They initially gave me a start date of the 5th of December, with the last one being boxing day. As I'm at my daughter's for Christmas, I wouldn't be able to do boxing day. When I phoned,  they agreed to start a day earlier, so will now finish on Christmas eve. I'm a little concerned about the journey, as a lot of appointments are before 9am, it will mean travelling on the m25 during rush hour, which isn't ideal.

    My wound is now apparently healing too quickly, so dressings have changed again. They are still quite happy with how it's going, will just be a slow process. 

    Have  finished all my Christmas shopping, so now won't have to worry about it, while going through radiotherapy.

    How are you all doing?

Children
  • Hi Pippin

    Weekend was lovely thank you, I just holed myself up for most of it and avoided the wet and windy stuff!  Though we weren't too bad with the winds up here in the East Midlands. 

    Goodness I didn't even know they'd do radiotherapy on Boxing Day!  I'm glad you've managed to get it shifted though so you finish on Christmas Eve.

    How can a wound be healing too quickly?  Sometimes the medical profession baffles me (well, frequently actually lol).

    I'm doing well thanks though I was mortified when I was weighed at my final immunotherapy session to find I'd put on a stone since I finished chemo!  Need to get that in check immediately!  But the upside is I got to ring that bell.  Woohoo!  No more treatments now until February for my next Zoledronic acid infusion.  In the meantime it leaves me free to prepare for and enjoy Christmas this year and see the family.  I didn't get to see them last year as I was too poorly to travel.

    Good luck with the radiotherapy when it starts next month.  The travelling will be the worst part unfortunately but the treatment itself will be a walk in the park in comparison to everything else you've been through. 

    Take care 

    Carol xx

  • Hi Carol, I too avoided going out in the awful weather, sat and watched a couple of Christmas films instead. 

    I was a bit surprised myself when they said wound was now healing too quickly. Apparently it was granulating too quickly. This means the tissue starts to form too quickly, which will then die off before wound has healed. They've now changed the type of dressing to address this.

    So pleased that your immunotherapy has now finished and you got to ring the bell. Another thing you can now tick off. I'm sure your weight will sort itself out. I've been enjoying being back to my slimming group in the last few weeks as I  missed a few weeks due to surgery. It must be a wonderful feeling knowing that you have no more treatments until February, you can just relax, chill out and enjoy Christmas with your family. Xxx