Hi Pippin,

This is fantastic news. After all that you've been through, a few sessions of radiotherapy should be a breeze for you.

Have a great weekend.

Jolamine xx

Hi Pippin

That's great re your mobility.  Mine was so poor after chemo and surgery as I wasn't really able to do anything whilst having chemo as it completely knocked me for six.  I'm sure your tummy will heal soon and that's great all your other wounds have healed. 

Re the Moving Forward course, they do like you to have completed all "active" treatment. I'm not sure if that includes radiotherapy, I suspect it might as you are still going to hospital (probably daily) for treatment.  You could always give them a call.  I had finished everything except immunotherapy when I went.  If you're radiotherapy is daily, you will get tired.  Not so much from the treatment itself but from the journey to hospital every day.  I would wait, but I don't know if that's the official line.  How many sessions are you having? 

xx

Thanks for that info Carol, think I will wait until the radiotherapy is finished. Not sure yet how many radiotherapy treatments I will be having yet, need to have a meeting with oncology. Not actually sure how long I will have to wait after surgery, for them to do the radiotherapy, something I will need to find out. Take care and keep in touch. Xx

I really hope you don't mind joining your threads.  I've been reading with interest since I was diagnosed with ibc on the 8th October.  Things are now starting to move this week with a view to starting Chemo on Friday.  My treatment so far as I am aware will be Docetaxel  Carboplatin and Phesgo.  Also bisphosonate treatment once I have had dental check up.  It was a lot to digest but I think I have my head around it now.  Still up and down emotionally but getting better.  I am in the process of getting a wig/wigs so hopefully these will be available when the inevitable happens.  What I would like to ask is what are the Phesgo injections like and what are the other injections mentioned that you are having between chemo.  Thank you all.  

Thank you.  I've got a Muga scan tomorrow.  I really should have started my chemo on the 1st November but my referral for the Muga scan seemed to have gone astray between hospitals but I can't complain because I only saw the Oncologist on the 18th October. I'm having my pic fitted on Tuesday and face to face meeting with Oncologist Wednesday.  Just a bit worried at the moment because I am having a lot of pain in the boob and under the arm.  Boob has been very swollen /hard and has been very uncomfortable since my first appointment with Nurse at my GPs.  Ive had a CT scan too - nothing had spread to my lungs for liver.  Unfortunately we have a funeral on Thursday and fingers crossed Chemo will start on Friday.  Not looking forward to it  but just want rid if this.  Busy busy week.  Xx

I did got boob pain also, a couple of weeks after my biopsies. Good to hear that your ct scan showed no spread, that is a big relief. I opted for a port instead of a PICC line, only because I didn't want to have to go and get it flushed every week. You will get used to having lots of appointments. I have 2 this week, one for a wound dressing and one with oncology. Hope your week goes well, take care. Xx

Hi Pippin.  This is the best news ever.  How wonderful for you and your family you must be so relieved.  Radiotherapy will seem like a breeze after everything you have endured so far.   
I used iodine patches in my troublesome scars they worked a treat.   I'm also booked on moving on course January and February as was advised active treatment needed to have ended.  

im really struggling with bone pain.  It seems to be increasing -  I'm back in chemo ward today for next zometa infusion and first lot of bloods since July !!   I had a wobble last week - was due to see oncologist in October so phoned to see when my appointment might be to be told probably not until end December.  I explained amount of pain I was in and histology result having found more cancer and how I wanted to speak directly with oncologist.  Reception queried if I needed urgent MRI scan - yet not being seen in timescales.  
Anyhow I am now seeing oncologist tomorrow.  I'm hoping it is the medication but do feel anxious again - it's never ending 

anyhow I've uplifted by your news. It really is fantastic 

xx 

Hi Carol

i see you experienced poor mobility.  Was this the result of medication or just knock in effect of chemotherapy.  
everyone responds so differently it can be confusing.  

im pleased you found the course helpful and an ongoing support network.  I'm struggling emotionally so really looking forward to support around that 

xx

Hi NGS, hope all goes smoothly for you today, with your zometer infusion. It's understandable that you get the odd wobble, especially when you have been expecting an imminent appointment, only to be told you have to wait another couple of months. So pleased they have now given you an appointment for tomorrow, I hope they will be able to relieve some of your anxiety. Let me know how you get on.

I have an appointment tomorrow for a wound check, it really does not seem to be improving. It is only a small section in the middle of tummy wound, but it is still gaping, although not infected. I have been using iodine strips for the past week, but doesn't seem to have changed much. Going to ask tomorrow if there is an option to stich this area.  I agree about it never ending, seems as if  you get over one issue, only for it to be replaced by another. Stay strong  we will get through this. Xx