Hi everyone, the saga continues regarding the phesgo. Pre op department phoned back yesterday after emailing everyone, to say not to have injection before surgery. However, pharmacy phoned today to ask how phesgo went at home, then went on to say oncology has said it's fine to have it the week before surgery. Have also had an issue with the phesgo injection at home. Hubby injected a bit lower on thigh, as suggested by nurse at last training session. However, I've been in pain all day in my leg and was really worried (panicked about dvt), especially as we are flying in the morning. Pharmacy got chemo unit to phone me and the chap that phoned me was very reassuring. He also assured me he would check out the issue of phego before surgery and get someone to text me. Told me not to worry and enjoy my holiday. 

Jolamine - I'm really not liking the aches and pains that come with getting old. I hope you don't have to wait too long to get a diagnosis. Xx

NGS - so pleased to hear you are now feeling more comfortable and will soon be able to enjoy a cuddle with your granddaughter. Hope your review with the consultant goes well. Xx

Carol - pleased to hear the moving forward session went well, sounds like amazing support.  I will certainly look into them at some point. I'm not sure what the patient's know best is, sorry but must have missed the link. Hope you have a lovely weekend in Scarborough with your friend. Have fun planning your belated 60th birthday holiday, you really should spoil yourself. Xx

Greeny80- I hope your oncology appointment went well. Did you get told when they will be remove your port and when your scans will be?  Enjoy your family time and I hope you continue to feel good. Xx

Well we're off to the airport in a few hours, can't wait to feel relaxed and chill out in the sunshine with a good book. Xx

Hi everyone, the saga continues regarding the phesgo. Pre op department phoned back yesterday after emailing everyone, to say not to have injection before surgery. However, pharmacy phoned today to ask how phesgo went at home, then went on to say oncology has said it's fine to have it the week before surgery. Have also had an issue with the phesgo injection at home. Hubby injected a bit lower on thigh, as suggested by nurse at last training session. However, I've been in pain all day in my leg and was really worried (panicked about dvt), especially as we are flying in the morning. Pharmacy got chemo unit to phone me and the chap that phoned me was very reassuring. He also assured me he would check out the issue of phego before surgery and get someone to text me. Told me not to worry and enjoy my holiday. 

Jolamine - I'm really not liking the aches and pains that come with getting old. I hope you don't have to wait too long to get a diagnosis. Xx

NGS - so pleased to hear you are now feeling more comfortable and will soon be able to enjoy a cuddle with your granddaughter. Hope your review with the consultant goes well. Xx

Carol - pleased to hear the moving forward session went well, sounds like amazing support.  I will certainly look into them at some point. I'm not sure what the patient's know best is, sorry but must have missed the link. Hope you have a lovely weekend in Scarborough with your friend. Have fun planning your belated 60th birthday holiday, you really should spoil yourself. Xx

Greeny80- I hope your oncology appointment went well. Did you get told when they will be remove your port and when your scans will be?  Enjoy your family time and I hope you continue to feel good. Xx

Well we're off to the airport in a few hours, can't wait to feel relaxed and chill out in the sunshine with a good book. Xx

Hi Pippin,

You're right, There's not much to promote this ageing lark!

I am so sorry to hear that you are still getting mixed messages re the Phesgo injections. I sincerely hope that the chap that you spoke to from the chemo unit, can get a definitive answer for you and that he will text you soon. The pain following today's injection doesn't sound helpful, just before you go away, but I'm glad to hear that you managed to get some reassurance about that, before you head off.

In the meantime, have a fabulous holiday and I look forward to hearing all about it when you get back.

Jolamine xx