Hi everyone, just needed to pop on here to let of a bit of steam, as feel a bit anxious this afternoon. I spoke to hospital pharmacy today as they are going to deliver some medication to me next week. I mentioned that I an due a phesgo treatment the week before my surgery and is that OK. After speaking to oncology they said that I could have the phesgo, then surgery, the following week. I then spoke to BCN about results of my ct lung scan I had in June. She told me it says all is stable, but should talk to macmillan nurse about it, which got me worried. Spoke to macmillan nurse, she said the results are not back yet, so BCN must have been looking at previous results  She then said I can't have the phesgo injection the week before surgery. She said you can't have it 2 weeks before or after surgery. So I'm getting really mixed messages and don't know what to think. I'm also due an echocardiogram next month and tried to explain to macmillan nurse that I'll be away from the 12th-29th September, around the time it's due. She just said if you get an appointment  just tell them you're away and they'll change it. But of course I won't see a letter if I'm away. It really needs doing before surgery as it won't be possible after. Have been told phesgo can't continue if echocardiogram not up to date. Apparently the chemo unit organises these appointments, so might try giving them a call tomorrow. Sorry for the rant but my head really us all over the place today.. 

NGS - how did everything go with your appointment with the surgical team? Hope you got some answers and they were able to reassure you.

Hope you've all had a lovely day. Xx

Oh gosh, not surprised you needed to offload. Definitely try and get hold of someone tomorrow who can hopefully get some appts booked in and give you some clarity as sounds like you’ve had lots of differing advice - so frustrating I’m sure but hope tomorrow you can get some more info and talk to someone who can help properly and put your mind at ease. It will all work itself out. They must be used to these situations. 

do you get any letters online at all via the NHS app? As you may be able to access communication while you’re away so you won’t miss a letter? 

Hope tomorrow provides some answers. Xx

Oh gosh, not surprised you needed to offload. Definitely try and get hold of someone tomorrow who can hopefully get some appts booked in and give you some clarity as sounds like you’ve had lots of differing advice - so frustrating I’m sure but hope tomorrow you can get some more info and talk to someone who can help properly and put your mind at ease. It will all work itself out. They must be used to these situations. 

do you get any letters online at all via the NHS app? As you may be able to access communication while you’re away so you won’t miss a letter? 

Hope tomorrow provides some answers. Xx