Hi all, what a lovely day today, hope you're all doing something nice. So, I went to the hospital to get bloods done through my port today. They wouldn't do them through port as said it needs to be after 10 days and it's only 9. They had told me at last chemo session it would be fine, that guidelines had changed to 7 days. A bit annoying as I could have gone to a closer hospital to have bloods done in the normal way. On the plus side, I asked them to talk to pharmacist for me about what gp can prescibe for hot flushes, as I've had to stop hrt. They suggested a suitable medication which doesn't affect hormones (as I'm pr positive, er positive and HER2 positive). I have a phone consultation with gp this afternoon, so hopefully she can prescribe this for me. Although receptionist did ask if the hospital were sending a letter (which they're not), so hope this won't be a problem. Also have my oncology appointment this afternoon, to see if chemo can go ahead on Monday. Off out for a walk shortly and out with friends for dinner tonight, which I'm looking forward to. Hope you all have a lovely weekend. Xx

Hey,

Ah that's annoying they couldn't access your port for your bloods this week. Hopefully by Monday and then going forward it will work perfectly but sorry you had a slightly longer journey to make today. Let us know what the oncologist says later...fingers crossed for the go ahead on Monday!

That's great news that the pharmacy has suggested some medication for your hot flushes! Let us know how you get on with that...really hope it helps.

Sunshine is amazing today, makes such a difference doesn't it?! Just been out for a lovely dog walk too....definitely helps having chemo this time of year going into summer..definitely better for the headspace!

I'm feeling pretty good today, weird taste still but not nausea, a little light headed maybe but all totally manageble and had a much better night sleep now i'm off the steroids!....my body definitely prefers this TC combo...although there is part of me that is still frustrated that my body couldn't tolerate the EC...I can't help but worry i'm not having the best chemo or the strongest one but i know i have to get that out of my head...and know that i have the next best thing and that my body just didn't want the EC so i have to ust go with it...but it does play on my mind a little!

Have a lovely evening tonight and let us know if you're good to go for Monday! xx

How's everyone else doing?? Sending love and hope you're all ok! xx

Hi Jolamine, I must say, I have been very lucky with treatment so far, with minimal side effects. Hopefully this will continue, when I move onto docetaxel in May, but will have to wait and see. Finger's crossed my ct thorax scan will show that lung nodules are nothing to worry about, but I'm a bit anxious about this. I'm also hoping breast scan shows that the treatment is working well. Hope you have been enjoying the lovely weather this weekend. Xx

Hope you're doing ok Jolamine? xx

Hope today goes well Pippin, last EC, whoop!! Hope they can access the port ok today and that you continue to feel good with minimal side effects...xx

Hi Pippin,

I am so glad to hear that you have had minimal side-effects with your treatment so far and sincerely hope that your scan shows that this is working for you. It's hard to believe that this is the last of your EC today - time to start worrying about the Docetaxel in May. Just enjoy these few weeks, before that starts. 

We moved house last weekend and are thoroughly enjoying the better weather down here in the south.

Best of luck for today.

Kind regards,

Jolamine xx

Hi Greeny,

I am a bit frazzled having moved house last week, but enjoying the better weather down here in the south. I am glad to hear that you are coping better with the TC and I hope that this continues.

Kind regards,

Jolamine xx

Thank you, just on my way to the hospital now. As you say its my last EC, so one milestone to tick off. Hope you're still feeling ok. Xx

I'm a bit apprehensive about the docetaxel, but going to stay positive and hope I'll do OK on that too. I think I also start Herceptin injections at this time, which I'm also a bit concerned about. Hope you enjoy your new home. Xx

Hope all goes well today Pippin.   I like you am apprehensive about the docetaxel.  I've taken comfort in knowing what to expect with EC.  

so everyone my spontaneous steak has continued.  We already have an adorable Goldendoodle Skye who is 3.  
May the weekend we decided on a little puppy - her nephew - Storm.  Hubby gets him in a couple of weeks.  I will need to leave the care to hubby due to chemo and wear gloves to avoid nips and scratches but honestly so excited and looking forward to a life post chemo 

my cousin has also gifted me an electric bike.  As you all know I have severe hip arthritis but I can cycle and the electric element will make it easier.  So happy to be able to factor exercise in to my days in the future 

positivity is the best medicine by far 

hope everyone is doing ok

xxx 

Oh this is fab news on all accounts!! 

ah a bouncing bundle of joy! Cute, what type of dog is it? That will be a nice distraction from Chemo for sure….and that’s amazing about the electric bike too. With the weather getting a bit warmer too it will be so lovely to be able to do some exercise outside. Brilliant that you bike with your hip. Oh this is a very happy message! Yay!

For those worrying about Docetaxol - I know everyone will be different but everyone I know who has done EC followed by Docetaxol has said it’s so much easier! I think the main side effect is tiredness and also neuropathy but hopefully after only 3 rounds that would be so harsh..honestly everyone has said it almost felt like a relief after the EC!

Im currently on TC and my body definitely prefers this to the EC! I was super tired and achy over the weekend so Fri/Sat we’re probably my worst days (having had chemo on Tuesday) my oncologist said those would be the worst and he was right…but all totally manageable and was fully functioning still and cooking dinner and walking etc..my mouth still has this horrid taste but I had that with EC too to maybe that’s the Cyclophosphamide? Who knows! But please, please don’t worry! 

pippin - hope you’re doing ok today and that you’re nearly home if not already! Xx

Sorry just re-read that it’s a golden doodle!! We have a 3 year old black labradoodle here! Xx

Sorry just re-read that it’s a golden doodle!! We have a 3 year old black labradoodle here! Xx