Hi everyone, I need of a bit of advice, not sure if I need to go to a & e. Had my port fitted on Wednesday, which has been itchy for last couple of days. Thought it was just due to the healing process. However, last night I noticed what looked like two blisters right next to each other. But they're hard to the touch and really itchy. Also looks like they could have been leaking a clear fluid.  This area is not near the actual wound, but right near the corner of the dressing, which I've now peeled away from this area. Any thoughts?

Hi Pippin, 

Sorry you’re worried and sorry to hear it’s itchy…could you call you BCN? Or do you have a post op number you can call?

I think if you’re worried you should go in, they’ll know straight away. Better to get it seen to sooner rather than later and will then also stop you worrying..I’m sure it’s nothing and just the port settling, that can take a few days but I think when you’re dealing with Chemo and lower immune it’s always best to get it checked. At least speak to someone over the phone first if you can.

Are they blisters or part of the scab from the incision? Make sure you keep it clean…

really hope it’s ok and nothing to worry about..sure it’s just part of the healing process. Do you have a temperature? That’s a good sign of any infection..

let us know how you get on. Sending positive vibes your way xx

I would agree that you definitely need to get some advice today from somewhere x

Yes,definitely get it looked at ,sounds like allergic reaction.Get onto Gp and Breast nurses.Keep it dry for now if you can xx

Will pop to a & e today, will post update later. Xx

Hi rumplestiltskin, think I might just go to a&e, as it's itching like crazy. Also the skin is broken and it's a bit oozy!

I have peeled the plaster away from affected area at the moment. They told me to leave it on for 7 days, so not sure whether to remove whole dressing. It's so itchy and skin is now broken and a bit oozy. A little worried it might get infected. The number they gave me is for Monday to Friday only. Typical, I have a problem on a Sunday! Did have a lovely meal out last night though. Hope you've been enjoying your weekend. Xx

oh not what you need but does sound like an allergic reaction and if oozing could quickly become infected so needs seeing.  Shame you don’t have an alternative number for chemo team when out of hours.  Let us know how you get on xxx 

Hi NGS, the itching has reduced since I peeled the plaster back a bit. I'm going to give it a couple of hours and see how it goes. If it gets worse or doesn't improve, I'll go to a&e. Hope you're having a good weekend. Xx

How are you doing Pippin? Hope the itchiness has gone. Did you go to a&e? Xx

Hi Greeny80, no I didn't go to a&e, couldn't face sitting up there for hours. Initially I took off the waterproof dressing, but left gauze dressing in place over the wound. It left the itchy area open to the air. NGS mentioned an out of hours number and I found one in my paperwork. I gave them a ring and they were really helpful and reassuring. They told me to take an anti histamine tablet for a few days. Also to remove the gauze ( there are steri strips underneath) and bathe in cooled boiled water. Then re-dress in different dressing from the one used.. It's now so much better and the itchiness has pretty much gone. They reassured me not to worry as it's not near the wound and likely a reaction to the dressing. They also said hospital would check it out when I go for pre chemo bloods at the end of the week, as port will then be used. Hopefully all will settle down now. Xx

Glad you managed to find a good out of hours number, they seem to have given you some good advice and glad to hear no a&e trip was needed and that it’s already feeling better. That’s great to hear. Have a good day! Xx

Glad you managed to find a good out of hours number, they seem to have given you some good advice and glad to hear no a&e trip was needed and that it’s already feeling better. That’s great to hear. Have a good day! Xx

Thanks, hope you had a lovely weekend. We're taking my elderly parents out for lunch today, as I have cycle 3 next Monday and will then isolate again for 10 days. Have been planning a birthday celebration over the weekend for my Dad's 90th Birthday in June. Finger's crossed I'll be well enough, as I'll be on docetaxel by then. My hubby says I need to think positive thoughts and it will be plain sailing, just like EC. So that's the plan! Xx

My son sadly got tonisilitus on weds/thursday so we had a pretty quiet start to the weekend..but the antibiotics kicked in pretty quickly so he was much better yesterday...we went out for a lovely meal together...enjoying the last few days of feeling good before round 2 tomorrow!

A lot of people i've spoken to have said they found the docetaxol much easier to deal with than the EC so really hoping the same goes for you. Keeping everything firmly crossed and really hope you make your Dad's 90th...

Good luck for your next round and enjoy your week 3! xx

Unfortunate that your son got tonsillitis, but glad you managed to get out for a meal together. Pleased to hear that people have said they have found docetaxel much easier. Will stay positive and hope that is the case. Did you decide whether or not to try the cold therapy for your hands and feet? Will be thinking of you tomorrow, hope all goes well this time round. Xx

Yeah the antibiotics kicked in pretty quickly and he's totally fine now thankfully! Poor thing though, he was really unwell for a few days. 

...and Yes i bought some mitts and socks from amazon, they are currently in the freezer! No idea if they're going to work and actually no idea how i'm going to keep them cold enough for long enough but thought i would give it a go and see. I actually bought some single use ice packs, which isn't great for the environment but was the only way i could really think of to pop those in when the original ice packs start to go warm..so will see how that goes! She did say that neuropathy was most likely to be my biggest side effect but that they would very carefully monitor it and may adjust my dose accordingly...she said that they do that all the time, they start of with a generic dose based on height and weight but that everyone reacts so differently and tolerates drugs so differently that they are constantly tweaking..they just said i needed to be really honest with how i was feeling! Sounds like you tolerated the EC so well though that hopefully you'll be the same for the Docetaxol next week..keeping everthing crossed. Must be nice to know you've finished the EC..nearly there!!!! 

I'll let you know how i get on with the cold mitts and socks. Have you bought any yet?

Hope the port is going ok today...have a lovely evening! xx

I haven't actually bought any mitts and socks yet, thought I'd wait and get a review from you first. If I do get them, I thought I could maybe bring a cool bag with ice blocks, to keep the packs frozen until needed. I didn't know you could get single use ones and not sure how they work. Will start doing a bit more research prior to cycle 4. Port area much improved today thankfully. Let me know how it goes tomorrow. Xx

I’ll report back!!! 

…then I can send you some links, if I’m allowed to on here?! I think you just snap the single use bags and it activates something inside which turns to ice!..but it’s annoying they are single use so not feeling that good about it..I’m going to take a cooler bag but I think with the mitts they only stay cold for 30 mins or so and I think my treatment is going to be a little longer than that..but I’ll let you know!! Xx

Hi Greeny80, have been thinking of you today. Hope all went well and you're feeling OK. Xx

Hi Pippin! 

Thanks for checking in! Has been a long day…but feeling good and luckily no allergic reaction!  Hurrah!!

The cold cap adds quite a bit of time and I had my blood test this morning too so that added a couple of hours waiting for those results and then the docetaxol took just under 2 hours…!they do it slowly for the first two cycles I think then speed it up a bit!..and then I had the Cyclophosphamide! 

I was going to write to you to review the cold mitts and socks! My mitts weren’t great, they didn’t stay cold for very long, I ended up putting extra ice packs into the gloves but it does mean you can’t do anything with your hands!…the feet/socks were good. My feet were freezing!!!…but again I think they probably lasted an hour or so??and the docetaxol takes nearly 2 hours…. Maybe you need two pairs or some extra ice packs to go with the socks!? I think I’d try the socks again but not sure about the gloves..may as well just hold ice packs in your hands!?! Shout if you have any other questions as happy to chat!!

Hope you’re doing ok and enjoying feeling good for week 3! Xx

Pleased to hear your treatment has gone well today.  One more ticked off.  Xx keep us posted on any side effects but hope they are minimal.  Take care xxx 

Sounds wonderful. Hope you had a lovely lunch with your parents. Xx I agree with your hubby.  Lots of positive thoughts and things to focus on and look forward to xxx it’s the best remedy 

90 what a fabulous milestone.  
I hosted a party for my Dads 80 th last June.  

xx hope your enjoying the rest week before we go again next week.  It comes round quickly for sure 

xx