How are you all doing ladies!? Just wanted to check in!! For those who had their second round this week, (Pippin, madhatter, Rufusblue, NGS)  I hope you’re doing ok and hope those side effects are still minimal…and really hope you can enjoy some fresh air but also put your feet up this Easter weekend.

i’m good, slight niggly throat still (day 10!!) but gargling difflam which is working really well. Slightly constipated but energy back and hoping for a good week or so before round 2 on the 9th! 

Oh and my taste might still be a bit off but it turns out chocolate still tastes good!!! 

Hope you all enjoy a lovely Easter. sending hugs xx

Hi Greeny80, lucky my side effects still minimal, a bit of constipation, which I think is the meds. Last time it eased up once I stopped taking the tablets. My injections start tonight, so hoping that goes smoothly too. Annoying for you that it is affecting your taste, but be sure to enjoy an Easter egg over the weekend. Glad to hear the Difflam is helping your throat, might have to ask for some, if I get sore throat this time. I had one really bad night of hot flushed and getting up for the loo, but the last two nights have been a bit better thank goodness. As you mentioned, hope everyone else is doing OK at the moment. Sending hugs and thinking of you all. Xx

Oh I just love that you’re taking this all in your stride and seem to be managing so well! Your body seems to be tolerating the EC so well..Amazing news! Good luck with the injections..hopefully you’ll breeze through those too! 

I only had about 60% of the dose for the first round but my body clearly didn’t like this one! Feeling so much better now my energy levels seem to be back to normal! Hurrah! Looking forward to hanging out with the family for the next couple of days in Jersey! Was so windy last night we very nearly didn’t make it! 

Have a good day! Xx

So pleased that you now can be with family for a couple of days in Jersey, I'm sure it will do you the world of good. We were just saying last week that we'd like to go to Jersey for a holiday, as we've never been. Any recommendations of where to stay would be greatly appreciated. Have a lovely Easter and sending big hugs. Xx

I can confirm Jersey is just what the doctor ordered! It’s been so so nice to be here! Amazing beach walks, catching up with family. It’s been lovely. If you do come to Jersey then let me know as I have loads of recommendations! 

Hope you’re continuing to feel good? 

Happy Easter! Xx

I can confirm Jersey is just what the doctor ordered! It’s been so so nice to be here! Amazing beach walks, catching up with family. It’s been lovely. If you do come to Jersey then let me know as I have loads of recommendations! 

Hope you’re continuing to feel good? 

Happy Easter! Xx

Hi Greeny80, so pleased that you have been enjoying your time away, I'm sure it's just what you needed.I have continued to feel pretty well, although I had a bit of an off night on Friday night; with hot flushes, then feeling freezing cold. Have now had 3 injections, without any problems, so fingers crossed, that continues. Getting a little nervous now about having my port fitted on Wednesday and will be glad to get it over with. Enjoy the rest of your break and have a lovely Easter. Xx

Oh hope the hot flush was a random one off…glad no other major symptons…please don’t be nervous about the Port. It will be totally fine…it didn’t hurt at all. If anything it felt slightly uncomfortable for a few days but it wasn’t sore and it will make administering the remaining cycles and blood tests etc so much easier and it will be over before you know it…I promise you have nothing to worry about. Are they doing it under local or sedation?

Xx

Unfortunately getting hot flushes all the time, now that I can no longer take hrt. Not sure if meds and injections are just making them worse. Mustn't complain though, my side effects haven't been too bad overall. As far as I know I will have sedation for the port. They've told me not to eat after midnight the night before.  Also no liquid two hours prior to procedure. Have to be at the hospital for 8.30am, so at least no hanging around. Thanks for your reassurance, I'm sure all will be fine. Xxx

I fear my life is about to become all hot flushes and other menopause symptons!! Just have to try and remind myself that it’s all for the greater good and preventing reoccurrence…which is the most important thing.

honestly you’ll be totally fine. I was sedated and it was amazing! I think I drifted off to sleep and then woke up just at the end…felt really relaxed and pretty peaceful after! The sedation was good! I wasn’t very good with general anaesthetic as felt very nauseous after that but the sedation was good!!! Will be thinking of you but it will be over before you know it. 

Hope you’ve had a lovely Easter. X

I feel much better about the port after hearing about your experience, have decided to chill out about it now. I suppose the menopause systems are a small price to pay, in the grand scheme of things. Sommething we'll just have to try and get used to! Had a very chilled and quiet Easter, as isolating until day 10. Hopefully will be catching up with the kids and grandkids next Friday, can't wait. Also hoping to take my elderly parents out for a nice lunch. This has been so hard for them, as they're used to seeing more of me. Luckily my mum is not too bad with a phone, so we facetime every day. Will let you know how it goes on Wednesday, take care. Xx

Hope everyone has enjoyed some time over Easter.  I will be so pleased once the injections end.  I really struggle with them. Whilst stronger pain meds have helped this time I just feel hung over the whole time and ache all over.  I’ve slept relentlessly and have zero energy. I’m also hyper sensitive right now and my skin feels like it’s crawling.  
Also just wondered how your doing with eating / weight control. 

it’s such a minefield of symptoms / unknowns all the time. 
good luck for Wednesday Pippin.  I agree with others it will make future treatments so very much easier 

hoping everyone is getting on ok 

xxx 

Hi NGS, so sorry to hear that you stlll struggle with the injections, this must be so difficult for you  I do get a little tired at times  and generally have a nap at some time during the evening. The biggest issue for me is the hot flushes, which do disturb my sleep. I managed to weigh in at slimming world the week before my 2nd chemo (target member for 8 years now), as I love going to my group when I can. I find I do put on weight the week after my chemo, which is annoying. I think this is because of having to eat before some tablets and after others. I end up eating when I'm not even hungry. Once that week is over I go back to my normal eating and it sorts itself out  I'm a bit worried about what will happen when I go onto the docetaxel, as I think the meds increase. Thank you for your best wishes regarding my port tomorrow, will just be glad to get it done now. I really hope you start to feel better once you finish your injections. Xxx

Hi Greeny80, just wanted to ask you about what clothing to wear after port fitting. Was it difficult to raise your arms to put on clothing or put on a bra?

Morning! 
I don’t remember wearing anything different after the port…probably just slightly looser clothing but nothing that I remember.. I would suggest a soft bra as the strap can sometimes dig in depending on where they actually insert it..(mine is totally fine now but just for a few days) the only other slight pain/uncomfort I got was when driving as the seatbelt was digging in/pressing on the port slightly so I used to have a nice scarf which I used to pad that area a bit…but it didn’t last long, a few days/a week max. I literally don’t notice it at all now…Arm/neck felt a little uncomfortable for a day but it was never sore. Arm movement etc was fine. 

Hope it’s all fine for you too! Will be thinking of you tomorrow..I know you’ll be glad once it’s over and I promise it will be over in a flash! Good luck for the next round too…

im starting docetaxol next Tuesday (along with cyclophosphamide) and I have to take double steroids the day before, day of and day after and then who knows what else after! I’ll let you know!! 

Hope the bowel movements are all ok! I’ve been eating a lot of apricots!..but now all seems to be good if not a little too far the other way!!! Always something!!!!!!

Take care and good luck tomorrow! Xx

Hey! How many injections do you have to take? I’m not looking forward to those either next time around..assuming I have to have them again with the slightly different drugs?? So horrid feeling hungover..especially when you haven’t had a good night out before! Sorry you’re finding them tough..Hope you can enjoy a few days feeling better once they’ve finished?? I’ve felt super dehydrated I can’t get enough water in and craving cucumber I think for the moisture! So weird! Have you got anything for the itchy skin? That sounds hard too..sorry you’ve been struggling a bit. 

First week I just wanted carbs!..which I don’t usually eat a lot of, I’m usually pretty healthy but I just wanted salt and vinegar crisps for the nausea and crackers and bread! I then lost my taste so it put me off eating much the second week I feel like coming into week 3 I’ve just got my tastebuds back a bit so eating normally and healthier..think my weight is going to fluctuate quite a bit!..which I know is going to be hard mentally as I’m such a fitness and health freak and conscious about my weight but I just have to try and lean into the fact things are going to be different for a while and my body just needs to deal with the drugs!! And to remind myself it’s all for the greater good.

Sending lots of love. When is your next round? Wednesday? Hope it goes ok. Sending positive vibes your way xx