Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Got a call today to arrange a date for my port. Unfortunately, can't fit me in before next chemo cycle, which is disappointing. First date offered was 27th March, which is only 2 days after my chemo, so was a bit concerned about this date. Ended up settling on 3 April. I'm pleased it's now been organised.

  • Oh that’s fab you’ve got a date. I had my port inserted yesterday, was sore yesterday but already feeling lots better today and I’m sure I’ll be so grateful for it when Chemo starts..glad the boob pain easing can totally understand that it’s a constant reminder…Hope you get your GP appt soon and hope the lower back pain gets better once the injections stop. You must be end of week 1 now so fingers crossed side effects should start to reduce a little??

  • That's fab you're getting out and about so much. I"m generally super healthy so my worry is losing my fitness etc but i'm determined to make it out for walks as often as i can....i'm so sorry you didn't get to see your grandson at the weekend but that was totally the right thing to do...but very happy to hear you might see him tomorrow, that will be worth the wait! Hope next week goes ok and isn't too much worse than the first one. I'm going to try the cold cap but feeling relaxed about it as in if i find it horrid then i'll just stop. I have pretty fine hair anyway so not sure how much it will work but i'll give it a go.I think i don't have a massive attachment to my hair, it's definitely not one of my best features!!...but I think it will feel strange when i do start losing some and i think the reality will hit then, it's such a visual thing isn't it?? I don't know how i'm going to feel..have you got a wig and some good scarves, hats? My mum brought round lots of her old scarves the other day for me to try as headscarves - that seemed very surreal! Hope you're ok and have a fan time with your grandson tomorrow and good luck for next week. Will let you know how i get on over here too...xx

  • Best of luck for tomorrow Greeny80   Will be thinking of you xxx 

  • Really sorry to hear the weekend didn’t go as planned but everything crossed for you and what a lovely thing of your daughter to do taking them out of school. Time is so precious.  That’s great you’re getting out for walks.  I was going to ask bout the hair loss. Have you had much loss at all ?   Whilst I’m hopeful loss of head hair will be minimal ive not seen much loss overall.  Bizzarly I then question if the chemo is working.  Will the worry ever end eh ? 
    xx 

  • Thank you!!! Hope you're doing ok...and hope the next round next week is kind to you. xx

  • I've not had any hair loss so far and feel a bit apprehensive about it. Keep giving it a little tug to see how it feels, a bit stupid I know. I too have worried about if chemo is working, especially as my side effects have been minimal. Seems like we all have the same worries, which is understandable. Good luck with your next treatment, hope all goes well. Xx

  • Hi Greeny,

    I shall be thinking of you tomorrow and I hope that it all goes well.

    Kind regards,

    Jolamine xx

  • Hi Greeny80, I'm am so looking forward to seeing the grandkids today. It's strange, when I was first diagnosed I thought it would be hard to he relaxed and happy during these months ahead. I know it's early days, but so far I'm feeling good. Good luck today, I will be thinking of you. Hope all goes well with the cold cap and well done for giving it a try. I would have too, if I didn't already suffer from headaches. I have s lovely wig, which I'm really pleased with, although I haven't actually needed to wear it yet. Will certainly be interesting. I have also bought a variety of headwear from a site called anna bandana, which someone recommended. They seem really comfortable. Take care and will catch up with you after your treatment. Xx

  • How are you feeling hun.  Hope 1 st round has gone ok.  
    xx 

  •  Ah thanks so much for checking in! Annoyingly i slightly fell at the first hurdle and had an allergic reaction to the E part of EC so they had to stop that one fairly promotly. They continued with the C part and then will switch my cocktail of drugs up for the next round probably to TC. Not sure how i feel about it, feel a little disappointed and now worrired that i'm now not on the best treatment plan but my body just didn't want that one so we have to move to Plan B....what i'm quickly learning is that cancer and cancer treatment is very unpredictable!..and i'm just going to have to try to go with the flow!

    Felt super sick last night so didn't sleep very well but have taken some more anti-sickness and steroids this morning and went out to get some fresh air with my dog which has definitely taken the edge off the nausea!...

    How are things with you? Looks like the PICC line is working out well, that's fab news! HOpe you're doing ok, when is your next round, Monday? 

    Thanks so much for checking in!! xx

  • Hope side effects remain minimal for you.  What a start but as you say this ride is certainly unpredictable and fluid.   I’m back next Tuesday for round 2 

    xxx 

Reply Children
  • Hi!!

    Just feeling very nauseous …but seems worse in the mornings…think it’s starting to ease a little, hoping so anyway!!! My kids break up for Easter today so need to be feeling a tad more sprightly! 

    hoping my new drugs don’t make me feel so sick! …otherwise haven’t had any other symptons just a bit tired so can’t really complain! And have managed to get out for walks, fresh air definitely helps!

    good luck on Tuesday. Sending strength and positive vibes your way for an easy round! Will be thinking of you xx