Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

  • Ok, so it's finally happening, hair is starting to fall out! I knew it was going to happen soon, but still felt a little panic set in. This morning there was no sign of it coming out, by tonight, I was barely touching it and it's just falling out. Think it will go quickly, so might consider just shaving it off. Certainly all seems more real now!

  • Hi Pippin,

    I'm sorry to hear this - remember that this is just a temporary blip.

    Thinking of you,

    Jolamine xx

  • Hi Pippin 

    I am sorry hun, its OK to feel what you are feeling right now. Take your time and just do what is right for you and empowers you x

  • Thanks Jolamine, I know you are right and it will grow back. Not sure why it came as such a shock really!

  • Hi MadhatterC, didn't sleep much last night and lay listening to some relaxing music. Have to admit I did have a cry. As much as I tried to prepare for it, the reality of it hit me like a sledgehammer. Really didn't expect it to be so difficult. Hubby was due to go out for the day today, first time since my treatment started. He's decided to stay home, bless him, as he feels that I need him today. Just need to pick myself back up and put my positive head back on!

  • Oh bless you, I can't imagine the feeling hun and I did think it would be playing through your head last night. I just come to the thinking with mine that it's like grief (even through it temporary and grows back) and there is no right or wrong way to feel about it as it part of us. So if you feel you need some time to be sad and cry you do that. If you want to be angry punch a pillow etc you do that, and then when you feel ready get that positive head back on tell this little sod that is attacking your body what for and give it the middle finger mate  

  • Thank you so much for your support. It is so helpful talking to others who understand what this roller coaster is like. I've detcided to phone shop where I bought my wig and arrange an appointment to shave it all off. Hopefully they will be able to fit me in soon, if not hubby will give it a go. Not sure he really wants to do it though!

  • Offline in reply to Pippin24

    So sorry hun.  Whilst I’m not there yet I completely feel all the emotions you describe. Hair loss is the one thing I’ve been so worried about.  It is what makes it all so real.  I echo all the other comments.  It’s a great idea to take control and shave it off. Rock the headwear and wigs.   You’ve got this xxxx sending love xx

  • Hope your appointment offered some reassurance for you.  It’s the waiting and unknown that certainly does create anxiety so you are not alone.  

    xx

  • So pleased to hear your scans were fine that is good news.  Good you have the chance to see the unit and all on track for Tuesday , as Pippin says you will be fine xx listen to your body and rest / sleep when you need to.  Will be thinking of you x