DCIS

Hi really need some advice as been a long diagnosis road for me and I am struggling to cope - diagnosed with DCIS on Friday but now need an mri sscheduled tomorrow to determine how widespread it is post biopsy . Consultant said it’s not urgent  but I am spiralling now can’t sleep and fearful of what I don’t know .  Any advice .? I can’t seem to figure if I have cancer or not .

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  • Hi Lorr123, do not worry too much. DCIS is considered a pre-cancer and is easy to treat and cure hoepfully. I got diagnosed with it last August. They do the MRI post biopsy to make sure there isn't anything else (hard to spot on mammogram if you have dense breasts like me), then surgery called local wide excision to remove the calcifications and take another look at the specimen under the microscope to make sure there is no micro-invasion and determine the final size and grade of the DCIS. Mine was HG and 16mm in length, so my oncologist recommended radiotherapy which I did for a week (called Fast Forward program where you have 5 fractions over 5 days Monday to Friday). And now I am taking 5mg tamoxifen daily. All went smoothly, I can't complain, I feel good. Do you what grade your DCIS is? If it's low grade, you might not need radiotherapy or medication, just surgery to remove it. Take care and good luck X

  • Hi thank you for your reply . I think it’s low grade but waiting for MRI as well and all will be confirmed ? What type of surgery is it to remove . It’s under general .? Glad yiou are doing well , hopefully my treatment will go well too , I am just feeling terrified at the moment x 

  • Mri won't confirm grade, only extent of Dcis, but biopsy does. Surgery is called local wide excision and performed under general, should take about an hour depending on how much needs to be removed. I didn't feel sore afterwards. Hope all goes well tomorrow, keep us posted X

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