Hi, my father was diagnosed 3 days ago and has his bone scan tomorrow so in the same boat unfortunately. Have you been given any timescales for results from the bone scan?

Hi Grace my husband has a bone scan tomorrow but said 2 weeks for the results have they said you dad's is advanced is he on any treatment xx

Hi. Just had the bone scan and told 10 days for results. He has also now got a CT scan for tomorrow. Not sure if he has been told it is advanced or not but he is being fast tracked so he may just not have relayed that piece of information to me. His PSA was 490 if that helps? X

Hi. Just had the bone scan and told 10 days for results. He has also now got a CT scan for tomorrow. Not sure if he has been told it is advanced or not but he is being fast tracked so he may just not have relayed that piece of information to me. His PSA was 490 if that helps? X

Wow that's pretty much half of what my hubby's level is my husbands level is 778 how is your dad doing hun xx

He is ok thank you. Preparing for the worst but hoping for the best. The waiting is the hardest thing. My dad has unfortunately had cancer previously, bladder cancer 4 years ago so we have been through this before. So far the NHS have been fantastic and everything seems to be moving very quickly x

I have today been posted to Woodywood1 of  my PC experience since September.  You may be interested in following.  My.PSA was 310 in September 2023 and with ADT treatment since October it had dropped to 4 as of December 1st.  Hoping it will drop to close to Zero in the next blood test.  My testosterone level has certainly dropped with hot flushes, some hair loss, shrinkage of testicles and the odd ache.

That is amazing that your PSA has dropped that much my husbands PSA was 768 we don't know if it has dropped yet I am hoping so he had a CT scan and bone scan last Friday he has a biopsy tomorrow 19th December did they say if urs was advanced or not thank you for replying 

Hi.  Yes - mine was advanced with a Gleason score of 5+4. I was advised this score by the Oncology doctor three weeks after the biopsy - 32 cores taken. Hard to believe that your body is riddled with metastasised PC when you first find out and have had no real symptoms.  But I’ve accepted that ‘it is what it is’ (clearly no choice in this) and hopefully I’ll respond well to all the procedures. Let me know how your husband gets on. I was advised 3-4years with just ADT and (possibly) a further 1-2 years with the Darolutamide + Docetaxel.  Although when I look at survivability graphs for the latter treatments they show 50% at five years - so fingers crossed.

How long ago was you diagnosed 

My blood test was on September 4, 2023 with PSA at 310. Diagnosed at my first appointment with Oncology on September 20th. Put on 14 days Bicalutamide (ADT).  CT and Bone scans followed quickly with Biopsy on October 4th.  Full diagnostic situation of bone lesions advised on October 27th. Had a Decapeptyl injection (ADT) good for 30 days, with this followed up by an injection on December 1st good for 90 days. Next injection scheduled for January 24th. In the interim I have chosen the course of action previously mentioned. Hope this information helps as at the start of this ‘journey’ I didn’t know what to expect. 

Please keep in touch and hope all is well my husband is having biopsy as we speak right now are you on Facebook so we could keep in touch