Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

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  • Hi Mary I just wanted to say "Happy Christmas"  and to wish you all the very best on your recovery and for the new year ahead , as Jolamine said we think about you often wondering how you are doing ,Best Wishes to you and your husband  

    Jenny xxx

  • Thank you. I was told that, although the operation (7 hours) was successful, there were complications afterwards. I was in clinical care twice with dialysis the second time for a while. Was there for five and a half weeks. Back home now, full recovery 3 - 4 months. I had no idea how weak and tired I would be. Thank God for good surgeons! 

  • Hi Mary,

    There is no need to tell you not to worry, as, I'm sure that you'll be doing that anyway. What I am doing is hoping and praying that your results are as good as they were last time. It takes some time for the realisation of what a lot you've been through to sink in. Initially, you feel as if you are being dragged along with the flow, but after the operation is over and you begin to heal, you have time to yourself to think and ponder over how far you've come.

    It is really great to hear that you have managed to do some light weeding, but be careful not to overdo things. No amount of worry will change the outcome of your results, but I shall be thinking of you on 18th and have everything crossed for good news.

    Kind regards,

    Jolamine xx

  • I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!

  • I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!

  • Mary that must be terrible considering how you must have prepared for today ,I can't imagine how you must be feeling the not knowing and the imagining and wondering how much longer ,hopefully its not much longer and hopefully the results will be very good and you won't have to worry anyway , how are you actually feeling now Mary are you getting stronger and being able to do a few more things now ,I hope so we are always here for you so stay in touch x

  • I have done a little more light weeding - literally little! I am trying to be more sensible now and do a little at a time.

    Gradually and more and more, I have been able to say that I have had cancer.

    Did you see the Super Surgeons programme on Tuesday?

  • Hi Mary, so sorry to hear your appt was cancelled, back to the waiting game. Hope you don't have to wait too long.  I love your positivity in that you can say "I have HAD cancer". That's brilliant x

  • Hi Mary,

    I am so sorry to hear that your appointment was cancelled. It is so difficult to accept this when you were all geared up for it. Did they give you any indication of how much longer you may have to wait for the results to be back?

    I am delighted to hear that you feel fit enough to do a little more weeding, but glad to hear that you are trying to be more sensible about how much you tackle.

    Unfortunately, I've not been well myself this week, so didn't see the Super Surgeons programme on Tuesday - do I take it that you found this interesting?

    Please let us know when you get your appointment through - I sincerely hope that it won't take too long.

    Kind regards,

    Jolamine xx

  • Hi Mary no I didn't see Super Surgeons on Tuesday ,to be fair I don't watch much TV but I'm sure you found it very interesting considering you had a super surgeon ,he wasn't on the programme was he ??? that would have been something special for you seeing the surgeon who did your operation ,I wouldn't have been surprised to see him considering the amazing operations he did for you ,I remember you saying he was a Top Surgeon x

  • Hi Jolamine its lovely to hear from you although I'm sorry to hear you haven't been well this week ,I'm hoping its nothing too serious and that you are now starting to feel much better x

  • Hi Jenny,

    Many thanks for your kind thoughts. I am getting a little better each day and should soon feel back to normal. I hope that you are keeping well and enjoying this lovely weather.

    Jolamine xx

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