Hi Mary I just wanted to say "Happy Christmas" and to wish you all the very best on your recovery and for the new year ahead , as Jolamine said we think about you often wondering how you are doing ,Best Wishes to you and your husband
Thank you. I was told that, although the operation (7 hours) was successful, there were complications afterwards. I was in clinical care twice with dialysis the second time for a while. Was there for five and a half weeks. Back home now, full recovery 3 - 4 months. I had no idea how weak and tired I would be. Thank God for good surgeons!
Hi Mary its so lovely to hear from you and to realise that you are progressing ,what a brilliant surgeon you had to get you to this stage ,such a massive operation and there you are weeding the garden ,its the perfect time of year to start doing bits and pieces and pottering slowly but surely and then resting whenever you feel like it ,so Mary keep going and rebuilding your strength you are doing amazingly well and I hope you go from strength to strength ,take good care lots of kind wishes ,let us know how you go ,keep in touch Jenny x
Today I had the first scan locally and I shall find out the results on the 18th. Easy to tell myself "don't worry, they'll either be okay or not", but not so easy to heed my own advice!
Hi Mary I think most people will agree its the hardest part waiting for results , its the unknown keeps the mind active ,at least the waits not too long compared to some ,I wish you well and hope you have good results .
There is no need to tell you not to worry, as, I'm sure that you'll be doing that anyway. What I am doing is hoping and praying that your results are as good as they were last time. It takes some time for the realisation of what a lot you've been through to sink in. Initially, you feel as if you are being dragged along with the flow, but after the operation is over and you begin to heal, you have time to yourself to think and ponder over how far you've come.
It is really great to hear that you have managed to do some light weeding, but be careful not to overdo things. No amount of worry will change the outcome of your results, but I shall be thinking of you on 18th and have everything crossed for good news.
Mary that must be terrible considering how you must have prepared for today ,I can't imagine how you must be feeling the not knowing and the imagining and wondering how much longer ,hopefully its not much longer and hopefully the results will be very good and you won't have to worry anyway , how are you actually feeling now Mary are you getting stronger and being able to do a few more things now ,I hope so we are always here for you so stay in touch x
Hi Mary, so sorry to hear your appt was cancelled, back to the waiting game. Hope you don't have to wait too long. I love your positivity in that you can say "I have HAD cancer". That's brilliant x
I am so sorry to hear that your appointment was cancelled. It is so difficult to accept this when you were all geared up for it. Did they give you any indication of how much longer you may have to wait for the results to be back?
I am delighted to hear that you feel fit enough to do a little more weeding, but glad to hear that you are trying to be more sensible about how much you tackle.
Unfortunately, I've not been well myself this week, so didn't see the Super Surgeons programme on Tuesday - do I take it that you found this interesting?
Please let us know when you get your appointment through - I sincerely hope that it won't take too long.
I am so sorry to hear that your appointment was cancelled. It is so difficult to accept this when you were all geared up for it. Did they give you any indication of how much longer you may have to wait for the results to be back?
I am delighted to hear that you feel fit enough to do a little more weeding, but glad to hear that you are trying to be more sensible about how much you tackle.
Unfortunately, I've not been well myself this week, so didn't see the Super Surgeons programme on Tuesday - do I take it that you found this interesting?
Please let us know when you get your appointment through - I sincerely hope that it won't take too long.
Hi Jolamine its lovely to hear from you although I'm sorry to hear you haven't been well this week ,I'm hoping its nothing too serious and that you are now starting to feel much better x
Many thanks for your kind thoughts. I am getting a little better each day and should soon feel back to normal. I hope that you are keeping well and enjoying this lovely weather.
I am so sorry you have been unwell but hope you will feel better soon.
No, I wasn't told of a new appointment for the results. However, I decided that I would ring radiology to ask how long results of scans were taking.This was yesterday. The polite lady did not tell me that but she asked for my details and told me that the results were sent to the consultant 7am that morning.
It sounds as if you should soon be hearing from your consultant. I'm sure that it must have felt strange seeing your him on television, but this just goes to show what a super surgeon you had.
I had an email from the sarcoma specialist nurse, who is a lovely lady, and I had a lovely telephone conversation with her too.
Her email said:
"I now have the report of your CT scan, and this shows no evidence of any new cancer and no sign of recurrence. There are some tiny nodules in the lungs which are unchanged since the last scan and therefore thought not likely to be malignant, although we will be keeping an eye on them."
Very encouraging news. No signs of reoccurance or new cancer - I'm so pleased you get to read those words, I immediately rushed downstairs to tell my fiancé when I saw your update.
It is reassuring they will keep an eye on those lungs, but certainly take comfort knowing they are tiny and unchanging.
I hope your recovery continues to progress and you go from strength to strength going forward
This is just the news that we were all hoping that you'd get. It must be a great relief for you, that everything is moving in the right direction and, you can continue to recuperate, without needing any further surgery.
Do please keep us updated from time to time, as you continue to push yourself back to good health.
Thank you for being with me along my journey. You, Jenny and others have been reading and posting and watching and waiting. It has meant so much to me.
