Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

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  • Hi Mary I just wanted to say "Happy Christmas"  and to wish you all the very best on your recovery and for the new year ahead , as Jolamine said we think about you often wondering how you are doing ,Best Wishes to you and your husband  

    Jenny xxx

  • Thank you. I was told that, although the operation (7 hours) was successful, there were complications afterwards. I was in clinical care twice with dialysis the second time for a while. Was there for five and a half weeks. Back home now, full recovery 3 - 4 months. I had no idea how weak and tired I would be. Thank God for good surgeons! 

  • Hi Mary I'm so very happy to hear from you  ,I've thought about you often ,I'm over the moon the operation was successful what wonderful talented people ,God certainly gave them a wonderful gift ,you have all the time in the world to get back on your feet so just take each Day as it comes and recover at your leisure ,no doubt your husband will be thrilled to have you home ,I hope you go from strength to strength and enjoy your lives together again ,Best Wishes Mary stay in touch when you can xxx

  • Hi Mary,

    I am thinking of you and just wondered how your recovery is going. Hopefully, you've not had any more set backs? I expect that you are still feeling weak and tired - unfortunately, this takes some time to go.

    Take care.

    Kind regards,

    Jolamine xx

  • Weak and tired - you're right.Doctors have said listen to your body, do what it tells you, another said most people that had had what I have had done would still be in bed - I was up in my dressing gown when he saw me. I have been out three times so far since returning home, all medical appointments - splenectomy vaccination, blood tests, and renal clinic appointment. 21st March I shall be seen by the surgeon who did the operation. I do get impatient with myself, my husband is patient, bless him.

  • Take each day as it comes is absolutely the right thing to do. I just get impatient sometimes!

  • Hi Mary,

    It's really great to hear from you and to discover that your recovery is doing so well. I know that you'll feel impatient that things are not moving fast enough, but you are certainly doing better than I was at this stage post surgery - they still had me incarcerated in a hospital bed. It's reassuring to hear that you have been out 3 times, albeit to hospital appointments. I notice that you'll see your surgeon soon and I hope that the appointment goes well. Continue to take things day by day and you'll eventually get there.

    Please keep in touch and let us know how you get on. Don't forget that we are always here for you.

    Kind regards,

    Jolamine xx

  • Mary how lovely to hear from you ,It sounds like you are doing really well at this stage ,God Bless you and your husband he is looking after you very well ,I hope your appointment on 21st March goes well you had a marvellous Surgeon who certainly knows his stuff and then hopefully plenty of sunshine this Summer should help you a lot so you can get out a bit more ,keep going Mary I think about you often as I know Jolamine does too ,take care Mary you and your hubby until next time thanks for getting in touch x

  • Thank you for all your encouraging words. They do help a lot.

  • Thank you for all your encouraging words. They do help a lot.

  • Hi Mary its good to hear that our little messages help you and let you know that we are always here for you , I hope you are getting a little stronger every Day ,maybe you are even surprising yourself with a bit of progress every day , keep going and stay in touch its so lovely to hear from you again ,my thoughts are with you and your husband x

Reply
  • Hi Mary its good to hear that our little messages help you and let you know that we are always here for you , I hope you are getting a little stronger every Day ,maybe you are even surprising yourself with a bit of progress every day , keep going and stay in touch its so lovely to hear from you again ,my thoughts are with you and your husband x

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