Breast cancer? Bone pain? re occurance?

Hello, Im going to say sorry now for the long post.

I had Invasive Ductal carcinoma in situ 1 year ago in my left breast. 20mm (grade 2) alongside that I had DCIS 40mm (grade 3 that dropped to grade 1/2)

er+pr+ 99% her 2 - 

im 33 now and I had a lumpectomy, then had Chemo 6 rounds FEC T. Then went for a Mastectomy as I still had wide spread of DCIS. however after that my margins where not clear, so i went back for 2 more lots of surgery on my nipple area. I was finally told in March that i now had clear margins. I also then had a full hysterectomy. 

started on exemesthane. Now we move forward to the present. MY ONCO score was 16 

Over the last 6-7 weeks I have had issues after issues. my left side arm/hand/armpit/Shoulder. A non stop deep dull ache, pins and needles in my hand and aching all down my arm, Im very tired all the time. 

my right hand - TRIGGER FINGER !

I have nerve studies tomorrow. My concern is 

Could my cancer have spread ? What are the realistic chances of this happening with such an early breast cancer? Could it be something else? I just hate how I am feeling and my head is in the gutter. Its the non stop aching in my arm and shoulder blade and the pins and needles. I am so scared and worried. none of the specialist seems worried. Because the pain goes when I am lying down and sleeping, but soon as im awake its back and all day long. 

Could it be tension or stress or a deep knot? I am having a mri on my breast next week and then seeing my oncologist a week later to discuss the pain.

has anyone had this? I have  3 little children and the thought of this coming back after me hitting it so hard with treatment last year. 

  • Oh bless you.  I totally get why you feel so worried, but I’m sure all will be well for you. This was me earlier this year with recurrent hip pain.  I was diagnosed with IDC and DCIS stage 1 a year and a half ago.  I was in bits thinking it had spread and I was now stage 4.  I’m happy to say this wasn’t the case.  

    My GP sent me for an x ray which showed nothing specific and I ended up with the physio.  It’s so scary isn’t it!   It sounds very positive that your pain isn’t there all the time and it doesn’t keep you awake at night.  This sounds like tension/possible trapped nerve that sort of thing.  I hope you can get some reassurance.  Getting diagnosed with BC is a terrible shock.  Anxiety is pretty common in our situation.  It will get better.

    All the best.

    Mary