Hi Kmills

Sorry to hear of your diagnosis. I've also been diagnosed with triple negative breast cancer.

You are not alone in this, talk to as many people as you can. Good to know you have a good support system with family. 

It really is a rollercoaster of emotions, talking to friends, family, medical people and everybody on here can offer strength and support. There are no silly questions..every question is relevant.

Sending hugs and love

Tracey x

I am just an emotional wreck just now. I think from going from a very strong minded person so a ball of emotion and fear is unsettling for me. 

My scans are on Thursday and then 2 weeks after I start 16 weeks of chemo and then an operation (wasn’t fully paying attention so could be wrong).

In all honesty, the side effects of it doesn’t scare me. Did you try the cold cap? I’ll take a year of illness as long as I survive. Do you have any tips for going to chemo and after? 

x

Hi

That is exactly how I felt, still.is some days. We all have good and bad and thst is totally fine.

I made sure that I started drinking plenty of water before my Chemo began, during and after. Dress comfy and take a throw, I get a bit cold. Take whatever you think you will need. The nurses are amazing and will.go through any concerns you have..its the unknown but you will feel looked after.

I tried the cold cap, but unfortunately I did not like it, but they are a few on my Wednesdays that do, so give it a try.

After I would advise listening to your body and taking care of yourself, do what feels right and don't push yourself to be super women...take each day as it comes, and if you need help, ask.

Hope this helps a little

Hugs Tracey xx

Hi Kmiĺls                                                              I  agree definitely a roller coaster of emotions. I was very distraught initially but now chemo has started and no really bad side effects, other than hair loss which will grow back. I still have worries about surgery after 24weeks of chemo. But my partner has been very supportive.  It is really good to have support from people going through similar experiences and emotions. 

I know it’s hard not to stress about it it’s only natural, and we all deal with things differently. I think I all ready new something was wrong before they even told me so it wasn’t really a surprise, we had our holiday booked which was a week after I was diagnosed, at that point they have all of my receptor results back so I didn’t know I was triple negative when we went away. My MRI was booked in for when I got back but I panicked on holiday because my breast started to look different/worse (more puckering). I was convinced the MRI would show it was worse than they thought, but then I worried for nothing as it only showed what was first diagnosed nothing more.

I suppose what I’m trying to say is try not to think the worst until you actually know, I worried for nothing.

I didn’t use the cold cap, I hate being cold and it also extends you time in treatment, it’s -4 degrees and I think you are in an hour before treatment and an hour after if you use it….I might be wrong but it wasn’t really for me, especially with no guarantee.

they did mention surgery to me aswell but I think it’s dependant on how well a job the chemo does. I’ve also had bloods done for the genetic testing.

the main thing is you have family support, and you have us on here who are also going/been through it to help.

mare you having a PICC line insert? 

xx

I felt the exact same. I was originally told it was a cyst because it was drainable but I knew deep down it wasn’t just that. I think the diagnosis of TN is just so scary as oppose to other BC’s but I may be wrong.

All I have/had was a lump which came on pretty quick- no change to my boob at all. I can feel more pain now than a few weeks ago but that’s all. So I keep hoping that because that’s all I’ve got I’m ok. 

Yes I also done the genetic testing on Friday. 

My famiky and friends have been great. My partner is in the army so works away a bit so I’ve really needed them. I’ve gone from loving my own company to hating being alone. 

No one mentioned a PICC line and I’m not sure what it even is. I literally to refused to google anything because I know I’ll end up down a rabbit hole. 

x

Regarding PICC line I had put in 4 weeks ago, and it was not as bad as I was thinking it could be. 

It makes it easier to recieve chemo and have bloods taken. It was not too painful to have put in, just need to keep it covered to stay dry, they supplied a sleeve for shower.

Yeh… I have also seen people mentioned private care after words so they can request their own scans inbetween NHS. 

I do feel sorry for him. And he’s the typical man of pretending he’s fine and denying he’s not when I ask haha. 

My nurse is calling me on Tuesday so it’s something I will ask her. 

Thank you so much for replying. You’ve really helped reduce the current anxiety and fears. I will most definitely be keeping in contact with you. 

x

Let us all know how you get on lovely xx