Non Hogkins lymphoma newly diagnosed

Hi,Ive just been diagnosed with Non Hogkins Lymphoma (follicular).I am struggling a bit with the active surveillance and how will I know if my disease is progressing?

My swollen  lymph nodes are in my retroperitoneum and I wouldn't  have known anything about it if I hadn't  had a scan fur an unrelated issue.Its all been a bit worrying and i feel as though everything is  very uncertain at the moment.

Parents
  • Hello Happywalker

    I'm sorry to hear that you've recently been diagnosed with NHL and that you're now on the active surveillance pathway. It's perfectly understandable that you're feeling uncertain and worried about what the future may hold. 

    Have the team responsible for your care talked about how they plan to monitor your health over the coming months? If you've been allocated a specialist nurse then do talk this through with them if you have concerns. 

    Alternatively, you're most welcome to give our team of nurses a call for some advice and support. They're available Monday to Friday 9am to 5pm on 0808 800 4040 and I'm sure they will be happy to offer any information and reassurance they can. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply
  • Hello Happywalker

    I'm sorry to hear that you've recently been diagnosed with NHL and that you're now on the active surveillance pathway. It's perfectly understandable that you're feeling uncertain and worried about what the future may hold. 

    Have the team responsible for your care talked about how they plan to monitor your health over the coming months? If you've been allocated a specialist nurse then do talk this through with them if you have concerns. 

    Alternatively, you're most welcome to give our team of nurses a call for some advice and support. They're available Monday to Friday 9am to 5pm on 0808 800 4040 and I'm sure they will be happy to offer any information and reassurance they can. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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