Cmml

I have recently been diagnosed with CMML it came as a massive shock as I've always felt quite healthy , the only thing I've ever had was appendicitis, it was only found during a blood test , I find myself waking in the middle of the night wondering how is this going to affect my life, although I'm 71 years old I am quite active and enjoy gardening, walking, and I'm wondering if this is going to shorten my life , its worrying me more that I would like to admit 

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  • Hi  I was diagnosed with cmml in April 2021

    I'm still in shock lay awake at night wondering what's going to happen.

    I was offered no treatment am on " watch and observe" program .

    Have bloods checked periodically.

    I'm told it's a slow growing cancer.

    Although  only diagnosed two years ago specialist said I've probably had a lot longer 

    I'm 71  

    Just plodding on lol

  • Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

  • Hi.Amispartacus.

    Just wondering how your getting on ?

    Hope all is good x

  • Hi strawberry99 I'm good thanks how are you keeping , nice too hear from you , I was going too give you a quick txt when I had my next blood tests,  I thought it was this month but its not till November , but I'm good , I seem too get out of breath a bit quicker but I've cut down on anything too heavy , anyway how are you , when is your next blood tests ,any changes in your health , I'm going to start doing a bit more walking along the beach , I keep saying I'll go but keep putting it off so have to make an effort, we'll best wishes and take care x

  • Hi Ampispartacus.

    Thought your bloods were this month hence message 

    My bloods not until December.

    I suffer really badly with fatigue 

    Don't feel my normal self but ok 

    My Mum always sad if you put one foot out bed in the morning and the other one followed your ok

    What part of country are you from 

    Take care x

  • Hi strawberry yes like I said I do get out of breath more easily , I'm in Ireland on the East Coast in a little village 12 kilometres outside the town of drogheda, its 40 kilometres from Dublin and about 60 kilometres from Belfast, I'm English and lived here for about 25 years, I'm presuming you are in the UK, anyway take care and keep well x

  • Hi 

    Let me know how you get on with bloods and I will do likewise 

    Yes live on Wirral 

    Take care x

  • Hi strawberry 99 how are you keeping, just a quick update,  had my blood tests 3 weeks ago and went for the results today, doc said everything all good as my bloods have actually improved,  they were down in the 60s but he said they were now in the 90s , I had a few questions for him after I had looked on the Internet but he put my mind at rest and just said to carry on as normal, get plenty of exercise and stay as healthy as possible,  how's things with you have you a test coming up, and how is your general health , my next test is 6 months, hopefully everything will be good again, well best wishes and take care x 

  • Hi Ampispartacus nice to hear from you.

    Glad you got positive results from your blood tests .Getting good results is a real boost to ones self mentally.

    I've got my bloods 14/12/23 I'll let you know how I get on .Fingers crossed all will be ok.

    Keep up the good work.

    Exercise and healthy eating lol

    Take care.

    Speak soon x

  • Hi strawberry how are things with you, how did your blood tests go , I sent an email yesterday but not sure if it went , I need a new phone , anyway let me know how you got on  I was keeping my fingers crossed for you,  take care x 

  • Hi Amispartacus

    Bloods are stable  so that's good.

    Consultant doesn't want to see me for 12 months.

    Seems a long time  till next appointment but he must think things are ok.

    Thanks for thinking about me.

    I didn't get email.

    Hope you have a lovely Christmas and that 2024 is a good year for you.

    Take care x x

  • Hi strawberry  

    Thanks for your post ,that's good news although 12 months seems a long time ,mine is 6 months, I was well pleased to get my results you must be too , well have a great Christmas, hope santa brings you lots of goodies, presuming you're on the good list , and have a fabulous new year, keep in touch it would be nice too hear from you, how things are going ok best wishes take care x

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  • Hi strawberry  

    Thanks for your post ,that's good news although 12 months seems a long time ,mine is 6 months, I was well pleased to get my results you must be too , well have a great Christmas, hope santa brings you lots of goodies, presuming you're on the good list , and have a fabulous new year, keep in touch it would be nice too hear from you, how things are going ok best wishes take care x

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