HER2 + ER+ PR- stage2 ductal invasive

I've just received the news that I'm not only ER+ (oestrogen) but am now HER2+. I understand it's more aggressive than just ER. I'm 54. Was due my second mammogram screening last year but due to delays over coronavirus I've still not been called. In April I found a lump felt about 2cm. GP said smooth and most cancers are rough to the touch. How wrong were they?

in Wales they can't do the triple assessment within two weeks so they call for mammogram, which gives them time to assess it before your triple assessment. Waited 4 1/2 weeks for clinic appointment and had biopsy. Results for Oestrogen was 10 days but took 3 weeks for the HER2.

Mammogram said 2.4cm but ultrasound said 0.9cm, they struggled to see it and biopsy was hard, 3 samples taken, tumour was tough.

so now it'll be a MRI to confirm the size if above 2cm it's chemotherapy and herceptin. I'm scared about chemotherapy.

Borrowed a book written by Professor Trisha Greenhalgh (GP/academic) and Dr Liz O'Riorden (breast surgeon) both had breast cancer. The complete guide to Breast Cancer. how to feel empowered and take control. Really helpful, easy to read. 

Any advice about my journey ahead would be welcome.

Parents
  • Hiya. My wife went through 4 (or maybe 5) cycles of EC, then 3 docetaxel. She found the first 2 EC chemos fine, but began to feel the effects on the 3rd. Nothing major in the grand scheme of things, but yeah, it was around the 3rd she took a bit longer to recover. Truth be told, she found the steroids affected her more on a day to day level than the EC chemo. She struggled to sleep. Let me tell you too, she was very argumentative on them too. We had a few arguments.

    Chemo tends to be accumulative, so many people find the first ones ok. but it is a very personal thing, and what one person experiences on chemo, isn't what the next person experiences. She was bothered with her gums, and oral thrush, so I would suggest, the first sign of mouth issues, nip them in the bud. What seems a nothing thing in the bigger picture, can actually become pretty major if ignored. A sore mouth can stop you from eating, and even drinking, and it's important you do both for obvious reasons during your chemo. She bought a bona fide baby toothbrush (some folk just stick with very soft adult brushes) because oral health is also very important. So I'd maybe buy one prior to any issue kicking in. Again, though, not everyone gets oral problems, so you might never need to alter your dental habits. But it's better to have one in the house than to run around at 10pm in Tescos finding one, like what happened to us.

  • Thank you for that advice. I had read about oral issues. As you said I think I'll buy a baby toothbrush in advance. 
    I'll warm my husband about being argumentative!

    most of all thank you for replying.

Reply Children
  • The arguments don't matter a jot, it's how you make up afterwards that matter. The arguments served a purpose insofar as it allowed both of us to let of steam. We never went to bed on an argument. Sometimes nonsense is said, that you think "wow", but yeah, they were forgotten about 30 mins later.

    Something we found funny was when we mentioned this to the oncologist during one of her appointments. He laughed, and said he gets a few couples in that are barely on speaking terms due to the steroids. Not everyone gets argumentative, but the wife did. Probably a combination of the steroids and lack of sleep. No one mentions the lack of sleep, but when on steroids, it is a very real thing. You associate sleeping more often with a cancer diagnosis. We didn't experience that at all. The wife wished she had, and she wished someone had warned her about that too.