Question about chemo for her2+ breast cancer

I was diagnosed last week, and have my first oncology appointment this Thursday. I know I'm getting 9 rounds of chemo (3week breaks inbetween). I'm also getting two targeted medicines. My breast cancer is invasive ductal stage 2/3 and in 3 lymph nodes, her2+ I have my mri on my breasts tomorrow. 
 

but I was wondering as anyone had similar treatment to mine? I will be doing everything my consultant suggests- im trying to read up, but I'm struggling to find similar cases

 

thanks 

Parents
  • Hi 

    Just looking at a few posts and thought I could add my diagnosis and experience so far. I was diagnosed in February with breast cancer grade 3 and HER2 positive .I started my treatment at end of march for my first chemo and have now 4 more to complete with one targeted injection 3 weeks apart. I won't lie the side effects aren't nice but I'm getting through with good family and friends supporting me. If anyone wants to ask anything I'm more than happy to help where possible.  At the moment my worst symptom is nausea and chronic heartburn. Got Gaviscon to help but wondered if anyone had any dietary advice or anything to help with the nausea. We can get through this girls and nice to talk with those who can empathise too.

  • Hi, I have been diagnosed with stage 2, grade 3.  Not met with consultant yet but have been told likely to get chemo first then surgery.

    Chemo is freaking me out.  I know side effects are different for everyone but what is your experience of it ? Are you bed ridden or able to do stuff? I am absolutely dreading it! 

  • If I'm honest I have been in and out of bed each time. Try and get up for a couple of hours then go back to bed for a bit. My main problem is the nausea feeling and trying to eat to have some energy. Everyone seems to react a bit differently and difficult to predict.

  • Chemo has me a little anxious too, when do you start. I start on the 20th. Do you know what type of chemo your getting x

Reply Children
  • I don't know what I'm getting yet.  I got an MRI last week and get the results of that next week.  I wasn't expecting having to go back to clinic for results so am having a slight panic now thinking its worse than they thought.

    Dont see oncologist for a few weeks yet.

    All this waiting is so hard and draining on your mental health.   Does everyone else think this too?

    How many cycles of chemo are you getting? I'm sure everyone feels anxious before it.  Just have to remember its the only way forward and there are loads of people in the same boat.  This time next year all of this will be like a bad dream! 

  • I've been back and forward too, my nurse speacialist told me that the mri is more to check size of lump, and anything in other breast, but it wouldn't change my treatment plan. I have a cyst on other breast, and said wanted to take another biopsy and add another marker in my lymph nodes. I'm having 9 rounds of chemo (one drug for 4 then another for 5-then injections of a targeted drug for a year after-I'm also having an auxiliary clearance surgery for lymph nodes too. 
     

    your oncology appointment they will go through everything with you- mine was really good. He went through all treatment plan. Chemo, it was really positive and reassuring (well as much as anything with cancer can be of course). 
     

    the waiting is most definitely the worst-I was I'll waiting for my ct results to see if spread-thankfully it was clear.