Invasive Ductal Cancer Stage 2, Grade 3

Hi All, 

I recieved my results yesterday and it was I had IDC. They've organised for CT and MRI scans for next week and then it will be a 2 week wait after that to find out if its spread. I'm so scared if it has because the nurse was saying right now it's curable but if its spread then we'll have to see. Also, the receptor results will come back next week. So don't know if I'm her+ or her-. I've also was told ny lymph nodes number is 1. Which I'm hoping indicates that it hasn't spread widely. Does anyone know?

I haven't slept well anyways since the biopsy but I just feel the next few weeks will also cause a lot anxiety and sleepless nights. I'm really trying ti be strong but just feel so down. 

I'm 36 and no children and when the nurse was speaking about children she asked if I would like to freeze my eggs as chemo can cause an early onset for menopause. I couldn't give an answer then as I was just taken a aback. 

I feel overwhelmed right now with so many thoughts running through my mind. Created this chat for anyone in the same position, maybe we could support each other as time goes along. 

Zay

  • Zay 

    have you seen another site called Brest cancer now ? Hope this helps 

    love Lara ️

  • Hi Zay

    so sorry to hear your news. It's an emotional and psychological whirlwind and it takes time to process. I am only now able to talk about it without getting emotional - I too have invasive ductal diagnosis in January.

    i was diagnosed on 17 th Jan after having a biopsy and second scan on 9 th Jan . The wait between having the biopsy and getting the results was one of the longest of my life. Even though I knew it was cancer - the radiologist said it's suspicious and worrying .... very telling. My appointment was with an oncologist surgeon for the following week ...I had a lumpectomy at the startof Feb and they took 2 lymph nodes. Mine was receptor positive and I am waiting on the results from the tumor to check they have clear margins and to check that nothing in my lymph nodes. Its a 5 week ish wait for these results.

    I found talking helps- Maggies centres are good places to go and they do various activities. I haven't done any of these yet other than a virtual relaxation class. I also think getting in touch with Someonelikeme might help as they can put you in touch with someone who you can talk directly to. someone- see link below

     breastcancernow.org/.../someone-me

    Hope all goes well for you 

  • Hi Zay, 

    I am sorry too read this,, I was diagnosed October 2021, I had surgery, Chemo and Radiotherapy and now on hormone tables, Injections to shut my ovaries down and a bone infusion every 6 months to keep my bones strong.

    I had invasive  Ducted Carcinoma stage 1 Grade 3 node negative her2- oestrogen positive.  I'm 38 
     

    This will be the worst time for you in the process, the not knowing and waiting for scans then the scared feeling about results. The MRI and CT will give them a full picture of what is the best way forward to treat it and make you better. Sometimes patients have Chemo before and operation depending on what they find. You need too lean on your friends and family. I found two friends on here who were at the same stage as me, they were such huge support. You could always try breastcancernow.org/.../someone-me this is also very helpful.

    If you have been given a cancer nurse don't hesitate to ring her if you need to.  I didn't sleep for two weeks, I decided I wasn't even going too try so I would stay up with the Dogs and put a film on and fall asleep on the sofa.. your doctors will throw everything at this, once you have your treatment plan you will feel better.  You have got this okay,, You are more than welcome to messsge me on here if you need too. 
     

    love Sarah 

  • Thank you for the reply to my post. I just feel so down atm, I try to distract myself but I'm finding it hard. I've got a bone scan and then an mri on Friday before i start treatment, but hoping that it hasn't spread anywhere else. 

    I want to remain calm but it's so hard to under these circumstances.

  • Hey Sarah, 

    I try to lean on friends and family but worried that I bring them down too. We've just lost a our mum a year and half ago and now this has happened. My family are being supportive but I feel so bad. 

    Thank you for the websites, I'll try to reach out.

    I have a cancer nurse, shes been good in terms of arrange all my scans within a week, just the results need to come through.

  • I'm so sorry to hear about your Mum, I lost my dad September 21, it makes things so hard.

    don't worry about bringing them down, you will need the support. Life is really hard. Maybe your nurse needs to support you a bit more. You can always ring McMillan they are always so helpful and kind. 
     

    love Sarah 

  • Zay

    Thats understandable - the waiting is the worst time. Have you contacted your local Macmillan centre to see if there are any relaxation courses you could do or any support groups you could join. It does help,talking to someone who maybe has been in the same situation as you . By that I mean talking to someone  and that's why I suggested someone like me.It's a charity that put people in touch with someone that has gone through a similar experience and you can share feelings and thoughts etc etc in confidence. It's worth giving them a ring. Do you have a supportive family and friends that could help? 
    I like you am waiting for my results and I have tried lots of things such as distraction - talked to a couple of close friends that I trust and also read loads of stuff about what I might expect . A good book is - The. Complete guide to Breast Cancer -how to feel empowered and take control by Professor TrishaGreenhalgh and Liz ORiordan. Both medical professionals that were diagnosed with breast cancer .

    Try to be positive - my oncologist said that nine out of ten cases like mine come back with clear lymph nodes following the sentinel node biopsy - I am clinging onto that and trying to be as positive as I can . It does / has helped but I know it's easier said than done and I have some dark times . It would be untrue to say I don't. I just try not to let those times define me 
     

    BW

  • Hi all,

     

    I thought I should update this group. After receiving the results from CT and bone scan they found 2 lesions on the spine which they believe is cancer. So I've been diagnosed at stage 4. I'm her2+ so they will be looking at targeted therapy and chemotherapy to reduce the cancer. I've also been I've got 2 lesions on liver but they don't know what it is, so they'll be doing an MRI scan of the liver. The consultant said it could be benign. 

    I'm devasted and in shock atm. If anyone else is going through this please get in touch

  • Zay 

    I am sorry to hear this I hope that others will come forward who maybe in the same situation ️

    love Lara 

  • I'm so sorry to hear this Zay, what a shock. Hopefully the Her2 positive result gives you more treatment options and they can sort out a treatment plan soon xx