Newly diagnosed with non Hodgkin's lymphoma

Hi I don't know where to start. I'm 34 and before everything started I was happy and healthy.

Two years ago I was found to have bone lesions throughout my skeleton, affecting my sternum, Ribs, Pelvis and 50% of my spine. Initial thought to be cancer. After every scan possible it was decided that my condition was not malignant.

Over the last two years I have been suffering with ridiculous pain in my lower back and being passed from department to department with no diagnosis or treatment plan, just being given high doses of Morphine tablets and other pain killers.

 

Long story short, after having a CT for something completely unrelated, it was found that the lesions had grown and I was sent to London for a bone biopsy.

3 weeks post biopsy and I have now been diagnosed with non Hodgkin's lymphoma. I'm devastated, I feel let down but I mostly feel numb.

Im told I need a PET scan for staging and possibly a bone marrow biopsy. At this moment in time they're thinking treatment will be 6 months of chemotherapy.

I don't really know why I am posting, I think I'm just possibly just getting it off my chest.

Parents
  • Hi Gemma88,

    I have just finished treatment for Non-Hodgkin Lymphoma at the age of 33 and I totally understand you just wanting to get it off your chest . When I was 1st diagnosed I was also very angry and didn't know where to turn.

    I hope treatment is sorted quickly and that you win your fight

  • Hi [@Shelby2128]‍ 

    Thabk you for your reply, that's given me some hope, Glad to hear your treatment went well ️‍

    One of my biggest fears is that the cancer has spread with it have being misdiagnosed 2 years ago. I feel very numb atm but trying to continue life as normal as I can for the kids.

    Take care

     Gemma

     

     

     

  • Hi I was recently  diagnosed with this too I have no idea what stage it is at the moment -and waiting to hear from hospital when I will start chemo- how  are you getting on with it all- as I have no idea what’s to Come and it would be a relief to hear from someone who is going through this 

  • Hi Rebecca. my OH was diagnosed with NHL 9 years ago, diagnosed by a lymph node biopsy.  At first he was put on "watch and wait", after about 6 months he had an enlarged spleen and that was when he started his chemo.  He didn't have much in the way of side effects, a little fatigue and feeling not quite right for a day or two after each chemo session which from memory was every 3 weeks and I think he had 6 sessions - memory is a bit hazy on the exact routine.  He has been in remission and very well since then.

Reply
  • Hi Rebecca. my OH was diagnosed with NHL 9 years ago, diagnosed by a lymph node biopsy.  At first he was put on "watch and wait", after about 6 months he had an enlarged spleen and that was when he started his chemo.  He didn't have much in the way of side effects, a little fatigue and feeling not quite right for a day or two after each chemo session which from memory was every 3 weeks and I think he had 6 sessions - memory is a bit hazy on the exact routine.  He has been in remission and very well since then.

Children