Dcis

I have just been diagnosed with DCIS, my mammogram came back suspicious. Had a core biopsy , just waiting for an MRI . Then I'm scheduled for surgery and then radiotherapy. I'm 48, married with children. I'm petrified. I have never been in hospital, never been put to sleep . I'm beyond terrified. I know I'm being irrational but can't help it.

  • Hi Cookie,

    It's such a minefield isn't it - one unknown after another but you will get there I promise.

    I didn't have an SLNB - my team didn't feel it was necessary but am sure yours are just being thorough - the nature of DCIS thankfully is that it is not invasive so less likely to have affected any lymph nodes. Sorry, I cannot comment on the recovery from that perspective.

    I had a magseed too - all this new terminology and procedures to get your head round too!

    Will be keeping everything crossed for you on 2nd March.

    Be kind to yourself :-)

    Xx

  • Thank you!
     

    I have asked about the necessity of the SLNB to be told that it is a belt and braces. The consultant said that they only want to do one surgery and due to the size of the area I have DCIS they will not know for certain until it is put under the microscope what if anything is contained within. 
     

    It sure is a minefield and 5 weeks ago knew none of this terminology! 
     

    Thank you for your well wishes, I appreciate it ️
     

    xxx

  • Cookie 

    I hope you are well sorry to jump on thread I had a lumpectomy and slnb in July 22 I will try and answer any answers you need of my experience 

    love Lara ️

  • I'm so so thankful for all your replies. I'm terrified but find this forum comforting. I now have my MRI appointment for next Wednesday then after the results I will find out my surgery date. The most scary part apart from not wanting to die and leave my children is being out to sleep. I know in the great scheme of things that's the least of my worries but I've never even stayed in hospital before I'm generally a well person!! I'm just so frightened of the putting to sleep process. 
    I'm so sorry to seem trivial, I know there are people in a worse situation than myself. It's fear of the unknown I guess. But thank you ladies xx

  • Linz 

    I was where you are in July 22 honestly the beginning is the worst part after you get your treatment plan and operation dates ect it gets much easier , have you been told what operation you are having yet ? 
    if it's any comfort I'm now back to my old self a fizzy bottle of pop 

     

    love Lara ️

  • Hi Lara

    I have kind of jumped on this thread too! I hope Linz doesn't mind. I initially posted to support Linz but it seems that I probably need a little support too

    can I ask how you found the recovery? I am being told that the SLNB can be quite uncomfortable and I seem to be more concerned by that than the actually removal of the cancer! 
    I am having a therapeutic Mamoplasty so I think that is more or less the same as a lumpectomy but could be wrong...still learning! 
    I will also be loosing my nipple, as the DCIS is too close and my surgeon said it was 50/50 whether he could get clear margins if he tried to save the nipple. I have been assured by the BCN that there are cosmetic options further down the line when I also have a reduction on my 'good boob' for symmetry. Still unsure how I feel about the nipple but think that there are so many what ifs in this journey and my priority is to be rid of cancer. 

    With my surgery being a week today, any advice you think I need will be more than appreciated! 

    Cookie xxx
     

  • Lara,

     

    you are so supportive with your replies. Thank you from the bottom of my heart. Initially the surgery has been scheduled for a lumpectomy. Depends on MRI results next week to make sure. I'm out my mind with worrying. I even went to my village church to light a candle today and I'm not that religious. I feel like after the MRI we can move forward with surgery dates then radiotherapy.

    Like you, I can't wait to be back to being a fizzy bottle of pop!!! Xx

  • Cookie 

    sorry gif my late reply had a chaotic day 

    my surgery was very straightforward I had a lunpectomy and slnb I was out shopping 2 days after I made sure I wasn't giving in I should have probably lay down but that's me I felt I didn't want to be a patient I obviously didn't drive hoover ect for a few weeks but my loopy was on I was out the door , then unfortunately my fexukfs came back from slnb I had one lost I've nice so week after I had another operation to remove all my lymph nodes again this was ok only difference was I had a drain that time which was a nuisance but I still went out I put dresses over the top and off I go then hold need all nodes were clear of cancer . 
    I knlw exactly how you feel at this present time my love it's not nice but I coped by carrying on as normal for me it worked .

    ypu will feel so much better after your operation next week it's a relief when it's gone I promise you that 

    I'm here for support anytime x 

    love Lara ️

  • Linz 

    I think we go in to shock and you probably feel as if this is your life from now on but it's honestly not it's just a bump in the road it will even out then disappear and I now look back and think how did I get through that but at the time I sort of tried to ignore the reality of what was really happening.

    it's lovely that you lit a candle I hope you found comfort from it and make sure you do what makes you feel haspy now for this short time but just remember it's not forever it's a bump 

    I'm here if you need a chat 

    love Lara ️