Dcis

I have just been diagnosed with DCIS, my mammogram came back suspicious. Had a core biopsy , just waiting for an MRI . Then I'm scheduled for surgery and then radiotherapy. I'm 48, married with children. I'm petrified. I have never been in hospital, never been put to sleep . I'm beyond terrified. I know I'm being irrational but can't help it.

  • It's such a rollercoaster when you are first diagnosed. Just trust in your team of expert doctors in this field. You will be fine, there's lots of support on here. 
    Best wishes

    Silver 

  • Thank you, it's early days I'm still learning! I hope to take comfort and advice from others in similar situations. I just feel numb . Thank you for replying.

  • Linz 

    welcomd 

    I had breast cancer last year diagnosed in July by November I was finished treatment and my life became back to my normal fizzy bottle of pop personality I'm also 48 I now take a daily tablet a blocker and doing amazing 

    it's just a shock at first as silverdays said trust your team 

    you will be back to Linz before you no it 

    stay here for support we are here for you 

  • Wow that's amazing news, I'm so pleased for you. It's great to hear positive stories. Thank you so much for sharing this. I'm so scared, I guess it's fear of the unknown. I just want to fast forward the next few months. 
     

     

  • Linz 

    I was the same it's the first few weeks I cried I couldn't eat sleep I was there where you ate and at the time I feared that my life was never going to return to normal it's a crazy time my family my normal world disappeared before my eyes but I promise you it's not forever like you are today 

    put your Lippy on walk tall don't let it get you you will soon get it gone and the bump in the road will be gone 

    stay here for chats there are beautiful ladies here to chat to I can't leave now as it helped me so much last year 

    love Lara 

  • Linz 

    im also 48 

    I had lumpectomy and radiotherapy no chemo and I now take tamoxifen which I find not a problem either I read horror stories about them and they are not bad at all 

    love Lara ️

  • Hi there, 

    I am a little further along my Cancer journey. I too have DCIS (along with other bits) .  I totally understand that you are scared. Surgery is a massive thing to deal with. I just had mine February 15th,    you are not being irrational. Have you a breast care nurse that can help you with this?  The MRI for the boobs isn't too bad as you lie on your front and you can't see when you go into the machine.  Can you pinpoint what specifically is frightening you the most? For me it was being put to sleep. There was a person with me in the theatre beforehand to tell me who each member of the team was and what they did (that helped me).  I woke up, got told heaps of stuff I cannot remember and was given a cup of tea and some biscuits - absolutely the highlight.  Every member of staff I have met on my cancer journey have been wonderful. No question was unanswered, no question was daft (according to them).  I hope this helps, if you have any questions I can answer I'll give it my best.  You got this x 

  • Hi Linz

    It is completely normal to feel frightened but you have done the right thing posting on here. I have been lurking for a while and have took comfort in reading posts and knowing I am not alone.

    I am 41, single mum of 11 year old twins. I was diagnosed with DCIS on 25th Jan and have my operation next week on the 2nd March.

    After I was diagnosed I had to have an MRI and can assure you that you are going through the hardest part now...the tests and waiting for results. Once you have that appointment with your consultant/surgeon and a plan is put is place, it is so much easier to deal with. My BCN has explained it is a journey and we hope for a straight path but there may be a few turns on the way. 
     

    I am only a little ahead of you in this journey but if you have any questions or want to chat/vent I will listen.

    sending hugs 

    cookie

  • Hi Linz & Cookie,

    I am really sorry you both fnid yourself here and have been diagnosed with DCIS - the waiting and fear of assessments/results/treatment is horrific and it's totally understandable to feel anxious.

    I was diagnosed with DCIS (high grade) in Feb 2022, had MRI to check size/location on my 44th Birthday! Then had a lumpectomy in March, further surgery on April (this was cosmetic - they got all the DCIS in the first surgery), and then I had 5 sessions of Radiotherapy. I am married and have a (now) five year old,

    As scary as that all sounds, the surgery itself and recovery was pretty straightforward and I had few effects from the raditotherapy (other than a small bit of soreness but a good moisturiser did the trick).

    I have since had further follow-up and all clear! I have felt truly looked after throughout and will continue to be closely monitored so that is reassuring.

    The stress and worry is so real - but you can do this!! I wish you all the best with your journeys and if you have any questions I might be able to help with please ask! Not that I'm an expert but have been where you are now and come out the other side!

    Take care xx

     

     

  • Good morning PostivieT

    It really is great to hear from someone that has been through it and come out the other side! Thank you for sharing your journey!

    I have this week had a pre treatment appointment with my BCN and discussed all the 'what ifs' and it side tracked me if I am completely honest. I have been positive throughout since the diagnosis but was brought back down to earth with a bump. It is a minefield of clear margins, lympth node involvement etc!

    I have also had magseeds inserted this week so all ready for the big day! 
    Can I ask did you have an SLNB at the time of your op too? From what I am reading it seems that this is harder to heal from than the lumpectomy? 

    Cookie x