Hi.
I found out on 2nd Feb that I have been diagnosed with triple negative breast cancer, grade 3 which was also found in the lymph node biopsy. I was told I would need MRI, CT scan and genetic testing before starting any treatment.
I have received the letters in the post for my appointment dates for MRI and CT scan but I am confused by the wording on the CT letter as it just says Elbow Rt. Does this mean that they are only scanning my elbow? It is on the same side as the cancer but I thought they would scan more of my body to check that it hasn't spread. Is it to check other lymph nodes? Has anyone else had similar?
Also, the person who was supposed to contact me about genetic testing did not call when they said they would (over a week ago).
I am a naturally impatient person and I am concerned that if they haven't done the wider CT scan and genetic testing then this is going to delay any treatment. I am only just 50, have two children (aged 15 and 11) and am a teacher so I need to start making plans for dealing with this and getting support.
Should I ring my breast care nurse on Monday or wait until I have had the CT scan (Thursday).
Thanks.
