Bosniak type 4 cyst

Joined this forum/chat to help me come to terms with some bad news I received on 18th January 2023 after undergoing numerous scans, ultrasound, MRI & CT scan with dye. I have been told by urologist consultant that I have a bosniak type 4 cyst on right kidney.  Has anyone on here had the same thing?  If so what happened?  I have been told that I will need surgery to completely remove the right kidney.  Just wandering what my outlook on the future is going to be like.

They are sending me for emergency ct scan next week on lungs to see if it has spread.  But consultant has already said that a full nephrectomy is going to be needed in my case to remove the right kidney.  

I'm terrified and sick with in case it's spread!!!!!  Also the unknown as to survival rate.   I couldn't help blurt it out to the consultant when he told me.  I asked out right am I going to die?  He said no straight away (I breathed a sigh of relief) but then he continued on the path off ct scan on lungs and discussing further after results from that.  

I've read different things and getting into a tight Tiz!!!!  So worried you wouldn't believe. 

Any advice or experience would be appreciated right now. X

  • Welcome to the Cancer Chat community Gez1506 although I'm sorry to hear you've been told you have a bosniak type 4 cyst.

    I know this must be scary but I'm glad you've joined us as some of our members have also contended with this diagnosis, so you are not alone, and hopefully some of them will be along soon to share their experiences and advice.

    I hope this information we have about the full nephrectomy will be useful as well but if you'd like to discuss any of this with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very supportive and will do all they can to answer your questions and put your mind at ease.

    We're thinking of you Gez and will have our fingers crossed the CT scan shows it hasn't spread.

    Kind regards,

    Steph, Cancer Chat Moderator