Breast cancer diagnosis but may have spread to spine

Hi everyone

If you are taking the time to read this thank you so much!

I got diagnosed with grade 2 breast cancer a few weeks ago.  Not gone to lymph nodes.  3cm tumour.  I had got my head around a lumpectomy, radio and 10 years of drugs but then was completely blindsided at my appointment this morning.  The MRI has shown something in the centre of my spine andI need further scans, bloods etc before progresing with a treatment plan.   My back doesnt hurt in the centre where they have found something but the top iof my spine and neck have been sore.

I know it could also be related to other things but I am going out of my mind now not knowing.

Anyone else had any similar experiences?

Thank you

Kate

  • Hello Saundka

    I'm sorry to hear about your recent diagnosis and that the MRI you've had has flagged another area that needs further investigation. The uncertainty of what this may be may understandably be causing you concern. 

    Has the team said how long you will have to wait for the additional tests and scans? Hopefully it won't be too long before they have a clearer picture of what the situation is and they can discuss the best way forwards with treatment. 

    In the meantime, I'd suggest giving our team of nurses a call and chatting things through with them. It often helps to talk to someone and I know they will be happy to offer any information and advice that they can as well as help you think about questions you might want to ask at your next appointment. IF you'd like to talk with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040.

    Keep in touch Saundka and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator  

  • Good morning

    Thank you so much for your reply.

    Yes difficult times.  However I have now had my blood tests and my CT scan has been moved forward to this afternoon.  My bone scan should be pretty soon too.  

    Its the not knowing which is awful, the emotional rollercoaster!  Anyway I should get answers soon to get on with getting this awful enemy of hours sorted.

    Have a great day xx

  • Hi Kate 

    please stay here for support help and general chats it's a lovely warm place to chat to us all as we are all in different situations but all the same club , I wish you the best in your further investigations and please come back if you need a chat big hugs Lara xx. 

  • Thank you so much!!  i will x

  • Ah, that's good news that things are moving forwards. 

    Keep us updated. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • A few folk get coincidental findings pop up on their scans. They spotted something behind my wife's breastbone/sternum (she was grade 3 BC), and we worried too. It turned out to just be some sort of anomaly unrelated to the cancer.  But they did have to check just to make sure. No idea what it was because nothing has ever been mentioned about it since.

  • Hiyah - thank you so much.  That does stop me thinking every pain I feel is something to do with it and driving me nuts!  Fingers crossed.

     

    So sorry that you and your wife have gone through this nightmare too - I wish I could wave a magic wand so noone ever has to go through this ever again!

    Hope life is on the up now!!  :)