Hi LilLoops

I hope you are doing well? I just wanted to ask when were you referred by the GP for investigations and how long before seeing the oncologist. I have had ultrasounds and biopsies at the clinic day followed by mammograms, mri, more biopsies of another lump and then a PET CT scan but still not even an appointment with the oncologist. They have said its in my nodes and terrified that the PET CT scan says its now stage 4 but they won't give me the results until I see the oncologist, but no idea when that will be other than they said I am on an urgent pathway. I was referred on the 9th of September by GP so it seems a lomg time.to be waiting to not even have a treatment organised yet. I have now requested the scan information via my GP as it could be another week or 2 before I even get an appointment letter neber mind actually see the oncologist. Sorry for the rant I am just struggling this week! 

Xx

Hi Lj,

I am so, so sorry you are going through this. 
Timescales from GP - Oncologist was 7 weeks, by the time I start treatment on Monday it will have been 10 weeks.

The not knowing can drive you crazy, I strongly advise you to stay off forums and away from Google - easier said than done, for sure! 
 

The oncologist appt was pretty short notice so hopefully you will hear soon! Keep me posted, I'm rooting for you xx

Thanks LiLoops

I am just going to pieces and my armpit and breast lump feel massive and are actually painful now. I think after having such negative experiences with the oncology department for my parents who both died of cancer is bringing up lots of memories. To know I will have to go there is really hard. Plus if I remember rightly the oncology clinic means waiting around 3 hours to see an overworked (and unappreciated) oncologist for about 5 minutes before being ushered away. 

How are you feeling about the start of your treatment? Are you doing Ok?

Xx

Sounds like you have a lot of memories and emotions on top of this awful journey, my heart goes out to you. It's no wonder you are going to pieces. I really do hope you get answers soon, I was convinced I was riddled with it... the wait is savage, but I really hope it's not as you fear x

I was coping ok until today when I returned from work to a pack in my letterbox that I was jot expecting, with a big sticker saying "I am a chemo patient" which made my nose a bit snotty and gave me a wobble. Silly really! 
 

I really hope you do hear your results and things get moving for you soon x

Good luck my love let me no how you are doing or any help I can give you big hugs xx 

Hi lil pops.

I was also told before my biopsy confirmed. 
I was advised it was highly suspicious, and likely to be invasive ductal carcinoma. 
my biopsy was more to confirm the type of breast cancer I had, and to grade it. 
they look for the her2 status, and look to see if you hormone positive or negative. This will then form part of your treatment plan. 
I was diagnosed with pr er positive her2 negative IDC. 

[@lj292]‍ Great news about the lack of spread!

I told my kids once I had the facts on the official diagnosis, I basically was straight with them, told them I had cancer and that they will see me looking poorly once treatment begins, and I may likely loose my hair, but that is the medicine attacking the cancer not the cancer attacking me.

Treament starts Monday so fingers crossed it's uphill from there as the waiting is a killer!

Good luck everyone! 

Hi Ladies, 

sorry ive not been on for abit to be honest ive been really struggling. 
 
im glad to see that lots of you are progressing with treatments etc as thats all we really want is to get on with it and get over it as quickly as possible. 

i had my lumpectomy last Wednsday - get results from that next Thursday over 2 weeks wait. Im not sure of my treatment plan beyond that - think thats why im struggling. Is it normal to not know treatment plan until affer the tumour is removed and tested? 

my anxiety is through the roof - ended up in hospital on Tuesday with heart paliptations brought on my anxiey. I had a massive emotional breakdown last night and as a result have had to come back and stay with my mum and dad ( i live on my owm) 

hope everyone is doing ok - cause this is super hard xx 

[@Kat79Hal]‍ so sorry I don't seem to be getting notifications!

i am so sorry you are struggling. I get it, really, I have howled at the moon so many times and broke my heart into a pillow but ... a lot of it - the anguish - is the guessing, and the waiting. 
 

What you are feeling is normal, natural. *** as hell, but you are not alone.

Once you have your treatment plan it will, it really will, get easier. Not easy. But you will find it easier. 
 

Sending you love and hugs xx so sorry, it is ***.