Wife breast cancer diagnosis

Hi I'm just looking for some thoughts regards the current situation with my 37 year old wife. 3 years ago she found a lump and went to cosultant who performed ultrasound and said fibrous breast tissue as she was breast feeding. The lump stayed didn't seem to get any bigger so my wife left it at that.

This year she had a breast augmentation in March. Once the swelling settled the lump seemed more pronounced and larger. She booked another consultation and they were not happy so she had mammogram and ultrasound and then biopsy as they said they could see calcifications.the one consultant called another consultant to look at her as well and the second consultant was the one who per formed the biopsy.it was ultrasound biopsy so assume they would of had a good look and feel around the breast first??

I went to see the consultant initially for the results as my wife was so scared amd the consultant diagnosed an area approx 8cm of high grade dcis so from two biopsy areas so she needs masectomey.  

But since speaking to my wife they they actually took three biopsy and none of the biopsy were from the actual palpable lump in the breast. I've emailed the bc nurse asking this. I haven't mentioned it to my wife but I'm really confused as to why this would of not been biopsied? Also reading about dcis it doesn't usually present as a lump? And my wife's lump is very palpable.

The main consultant is on holiday as well next week so won't have the mastectomy till at least the following week. They also couldn't give me information as to what type the cancer it was I.e er positive etc and said they will do that after the test what they take out in mastectomy. I know I should trust them as they know what they are doing but I can't help but think it doesn't seem right? 

  • Hi Aifob

    Sorry, your wife is in this position.  I was diagnosed with high grade DCIS in 2018, mine was bilateral, the right one was 7cm, the left was 6.9cm. opted for wide area incisions. 

    I'm not sure why you feel they should have done a physical exam of the breast, the tests already showed high-grade DCIS and is wide enough to merit a mastectomy, so can't see what would be gained by a physical exam as all the tissue is going to be removed anyway. and examined by pathology.

    The post-results can be different from the original diagnosis as mine was upgraded from just DCIS to include invasive cancer. Therefore I think your wife's consultant is right to wait until the final pathology before stating type, stage etc

    I know this will be a very worrying time for your wife and you, and very difficult to hand control of your wife's health over to another but the breast team does know what they are doing. It may be better to focus on supporting your wife as she goes through this rather than looking for things that "doesn't seem right", your wife needs you to have confidence in the clinicians and process to allow her to feel safe and trust to be built between her and the breast team professionals.