Terrified and scared

Hi I heard the nurse wrong ,I thought she said I had stage three breast cancer , ok I thought I have a heck of a battle but my chances of survival are really quiet good .. when I telephoned my nurse all excited saying I had read some very good things about treatment my world imploded  she said no it's not stage 3 if fast growing and has spread into several of your lymph nodes is

it is a grade 3 tumour that I now understand through reading lots of articles on line mean I have in incurable an er and probably have two years to live... I am so sad... I wanted to see the world 

 

  • Hi Athena is it?

    I'm ProfBaw's wife and I hope I can reassure you a bit.  Ok first of all, it was in my armpit lymph nodes too.  And so I imagined all sorts just like you're doing. Were my shin bones suddenly aching? Etc etc.  And you probably get all tensed up including when you're sleeping which then results in aches and pains you fear are more cancer.  At this stage you need time to get your head around it.  A lot of the scans are done before the actual treatment starts and you should get it all explained to you in another appointment with your Oncologist (cancer Dr) once the scan results are available.  So you'll have had a bone scan in the nuclear medicine dept so they can check if it has made it elsewhere.  Mine hadn't luckily.  I couldnt feel anything in my lymph nodes and I think that's normal. It's not until you've been through chemotherapy and had an operation to remove the lymph nodes they're concerned about that you find out how many lymph nodes cancer was in.  I had 4 lymph nodes removed going in from beside my breast and Pathology (who examine what's cut out during the operation) advised my breast surgeon that only 2 of the 4 showed cancer but dead cancer cells, really good news.  My breast tumours were considered large but I have a fast growing typeof breast cancer.  My treatment is going really well.  I'm onto radiotherapy now which just makes me tired.  The treatments take time but in a way that's good as you get time to get your head together.  It's difficult and comforting at the same time to be on treatments as you're fighting it then.  You'll be ok you know, you just need to deep breathe and start believing it xx

     

  • Thank you Lucie , I will give them a ring tomorrow 

  • Hi thank you for contacting e. The doctor and the nurse said that several of my lymph nodes are have cancer cells which is why I am freaking out and think I am stage 4 ... I try really really hard to be positive and say it's not, but in my heart I think I am as several is a lot of lymph nodes... thank you and your husband so so much for coming on to my thread and trying to help me but I am in the biggest darkest hole in tge world... I am freaking out again at the prospect of losing my everything.... I really do appreciate your help and if you don't mind continued advice, I just feel so lost.... 

  •   My nurse told me it's invasive ductal breast cancer at grade 3 

  • I understand that you're really struggling and wish I could stop your fear but lymph nodes can be cut out in an operation, several or all of them even and this doesn't mean you're Stage 4.  What really helped me when my mind was racing was getting outside for a walk.  It honestly really helps to calm you down.  The bone scan will show if it's elsewhere, not the amount of lymph nodes and you need to try to focus on calming yourself until you're given an appointment for the scan results.  Loads of us have had it in our lymph nodes without it going anywhere else. Please try to focus on stress relief and yes, we're here for you to answer questions so ask away.  Chemotherapy is used to shrink tumours or wipe them right out and the operation is for anything left or to take out dead cancer cells.  You can do this.  Really!! xx

  • I think I understand that triple negative is the same as fast growing? 
    if I have got stage 4 workday it really be worth all the chemo as I would only have a 12% chance of survival if it is...  my head is spinning every second, I can never sleep for more than i hour . I really am grateful for your help, what treatment did you have, I am 52 the tumour is grade 3 .... I am Going to try and get a go appointment in the morning xxx 

  • If you're really struggling to function, maybe speaking to your gp is an option. They can maybe give you something like propranolol to calm you down. It's not addictive and works really well at calming you down.

    She'll tell you herself, but the wife got them. I think she only took them twice or thrice as she started to come down a little bit towards the scan and result days. You're gonna give yourself a heart issue before any cancer gets you if you keep running on adrenaline.

  • I will hope with all hoes I can beat this .... 

  • I forgot to say it's a 3.5 inch tumour ... I told you i can't  sleep...

  • Hi i could be very wrong here, normally measurements are given in centimetres not inches so your tumour could be alot smaller than you think.  You definitely want something to help you relax sooner the better. 

    Im really glad you have someone talking to you who's been through it so you have some definite ideas of your cancer and treatment. 

    Haven't told you before much about me and my uninvited guest. I've prostate cancer gone to lymph node's, pelvis, spine, ribs and a lung, no operation just permanent treatment which changes now and again to keep cancer count down, i also mostly look after my wife who has dementia, white matter brain disease (when the brain slowly dies),and she's had 7 TIAs (mini stroke),she's in hospital just now having trouble with her blood results. 

    Im hoping you get to dr this morning and get things sorted.  Definitely tell Dr everything. 

    Thinking of you, try to keep relaxed or busy. 

    Billy x