Terrified and scared

Hi I heard the nurse wrong ,I thought she said I had stage three breast cancer , ok I thought I have a heck of a battle but my chances of survival are really quiet good .. when I telephoned my nurse all excited saying I had read some very good things about treatment my world imploded  she said no it's not stage 3 if fast growing and has spread into several of your lymph nodes is

it is a grade 3 tumour that I now understand through reading lots of articles on line mean I have in incurable an er and probably have two years to live... I am so sad... I wanted to see the world 

 

  • Please don't check things online, apart from proper cancer lines, if you want to check on ladies and cancer go to top of your page at the blue line open search and insert what you are looking for. 

    Hope you can relax a bit it'll definitely help you. 

    Billy 

  • Hi Billy I hope you don't mind I send you a friend request as I am looking for as much help and support as I can get, I want to live . I don't want to let this evil thing win . Thank you for your help 

  • It's fine friends request, i speak to quite a few people and think i help most, it helps to keep me occupied as well, my darling wife of over 50 years is in hospital just now so im feeling lonely apart from our chihuahua Bella who sleeps alot. 

    Remember try to keep positive, keep yourself occupied helps. 

    Billy 

  • I will try   Billy . Thank you 

  • You're needing to sit down and take stock of everything that was said. I know it's scary as hell.

    Stage 3, grade 3 is curable. My wife has triple positive with the aforementioned characteristics. Her's was also in her lymph nodes. It's stage 4 when things are considered palliative, not stage 3. Stage 3 means it's usually spread to the local lymph nodes, but it's still classified as "localised", thus treatable. The nurse should have been more specific where those affected nodes are. If it's your underarm only, then yes, it is stage 3. Stage 4 means it's travelled elsewhere such as say, your lungs, liver or some place like that. That is stage 4.

    My wife was diagnosed with this very thing in Sept last year. She had a complete response to treatment, and all her pathology was clear of any cancer cells. Thus she is now classed as "NED" [No evidence of disease].

    Was it specifically said to you you have stage 4? Grade is just the agressiveness, not the spread.

    Not gonna lie, the treatment ahead can be tough as there are ups, then downs, but the wife hasn't met anyone yet that hasn't been able to do it. She's currently halfway through radiotherapy, as a belts and braces approach.

  • Hi ProBaw 

    thank you for your kind words of advice .. I am so happy for your wife . How many lymph nodes were cancerous they have told me I have several this iscwhyviam convinced it has spread ... I don't want it too have had as my daughter is so .. 

    they didn't say if the spread is in any other lymph nodes in my body but they have arranged a nuclear scan for Thursday of next week so I think they know it's else where .. 

    I feel so lonely .. streesedx. Sick everything ... 

    I am so so grateful for all and any support as I don't have anywhere else to go 

  • I know it's scary. You are currently going through the worst part of it all when it comes to the mental side of things. So never feel ashamed for how you're feeling. Almost everyone gets in a state at this stage. It's the unknown that kills you mentally. You have yourself dead and buried before even the treating doctors know.

    You will be getting the scans so they can stage you. As things stand, and because it's in your nodes, it will be currently classed as stage 3. But scans are needed to confirm this. My wife went through this too. As do most people in your position. It's just something they have to do.

    Seriously, do not look at google. It will tell you nothing at all as this stage. Only the scans will tell you, then the doctors. Google can't in any shape or form tell you what stage you may or may not be. Google is a great tool when you have all your own personal facts at hand. It's a great tool for putting you in touch with others in the same position as yourself, but it is not a diagnostic tool.

    There is no magic bullet to stop you worrying at this time, it's just an unfortunate part of an unfortunate set of circumstances. But googling will just make this part so much worse than it already is. A lot of the sites out there haven't been peer reviewed, you are not the person you are reading about, you will have your own outcome, and your own journey. Plus a lot of the information out there is outdated.

    My wife had extensive localised disease. She was a kick up the backside away from being stage 4 when they found it, but you know what? She wasn't, and she's currently cancer free. Her treatment was always curative in nature. So concentrate on your own set of circumstances and not the doom and gloom from some random website.

    STOP GOOGLING!

    Speak to people on here, and you'll be in a better place. Grade 3 cancer isn't a death sentence. There's many people even on here that are still cancer free years and decades later.

  • Hi my name is Danni, I'm sorry to hear you are In that big black hole. I want to put your mind at rest. I in 2009 was diagnosed with stage 4 and was told I may have a matter of 2-3 months to live. I was fast tracked through to Oncology where they operated on me quickly, diagnosis on the Thursday and treated on the following Monday. I am still here and I have survived it so far. I want you to know that the dark hole you are in I have been in several times. Having had just last year October High grade stage 3 which in Feb last year was tested and found negative. This returned very quickly and I was again fast tracked and again operated on. I am again facing changeable cells only 6 months on but you know what I'm a fighter and determined to fight this. So please have faith in yourself and pull yourself from that hole and sit on the side otherwise you could go crazy with fear, stay strong and get support from  Macmillan they are fabulous. I cried and cried on the phone with them and they gave me a therapist who I found absolutely fantastic. I hope you can now rest a little and know that I as a survivor to this is at least giving you some strength and hope. Please pull yourself out and sit on the side. I am here if you want to talk more xx

  • HiDanni  will send you a friend request if you don't mind ? I am indeed in a very dark hole, I don't want to die and am terrified it's everywhere.   Might be imagining it but I feel pain everywhere  I fear this thing will take me away, I am a fighter and want to see more of live I want to be cancer free I want to not think I am at stage 4 but I want to grow old with my partner we was supposed to get married on 17th sept but I have.  Cancelled it because I know about the side effects of chemo... I thank you so much for your kind words... I do feel so alone and afraid