Hi Kat

Really sorry you find yourself having to post here but nice to meet you. Do you have DCIS without IDC - is that what you mean by the tumour? If so, it sounds like quite a small area which is positive. It's such a hard decision and I often like them to talk me through the risks and benefits. DCIS behaves differently I know but hopefully if you know the grade that should mean they can give you some sense of what your best option is. It's got to be what's right for you and your life.

I have got invasive breast cancer, diagnosed a few weeks ago. But I also have some areas of suspected DCIS that still need to be biopsied. It's such a personal decision. I'm 41 and waiting for genetic test results but I feel like I want a mastectomy even if the recurrence risk is less that I expect it to be, I have got loads of cysts and benign issues that have recently come to light and so I will always be worrying about the latest lump or scan result. They have given me a macmillan book on reconstruction options and the photos have some  good examples of how new boobs can look if you do opt for mastectomy with reconstruction . That said, a very close friend had bc a few years ago when she was 38, and she hated the idea of a mastectomy so did everything she could to avoid one. I don't feel as attached to mine, especially not right now!

have you got a breast care nurse you can talk things through with? Mine has been really lovely and it's helped to chat with her.

wishing you all the best

lisa x

Hi Lisa

Thank u for responding m, yes at the moment I only have DCIS but got an MRI booked for Sunday to make sure there is nothing else. I have always had problems with my books, I gave had a cyst removed a few year back & also had part of my milk ducts on both breast removed due to infection, I gave always had a discharge even after having some of them removed but they just said to deal with it as they did not want to operate & possibly remove the nipples at quite a young age, so I am now thinking if I have a mastectomy that that will also sort that problem out. As yet I've not been assigned a nurse but hoping they will once I have been for the results of the MRI. They decision may be taken out of my hands if the MRI shows anything else but wanted to get it clear in my mind when I go. I just think if I have a mastectomy then there will be less tissue to become cancerous, I am like you, I'm not that attached to mine just want to make sure that there is minimal risk for a recurrence. My daughter is 21 & I've always drummed into her & shown her how to check for signs but she is now concerned that she has the faulty gene. 

I do hope that the biopsies come back fine for you & that you are sorted soon

Thank you so much, its so nice having someone who understands ️ 

Kat xx

Hi Kat, 

Really sorry to hear that you have been diagnosed with DCIS and have a big decision to make. Hopefully the MRI will reveal no hidden nasties and then you will have all the information to make the right decision for you. 

I was diagnosed with 24mm DCIS intermediate grade back in Feb. MRI showed nothing extra and I opted for lumpectomy. Pathology upgraded it to high grade but had clear margins so that was a positive. I am also having five rounds of radiotherapy starting 12th July. My mum also had breast cancer (invasive) but no other family history. I'm 44 so young-ish but would definitely opt for mastectomy if I ever had any further DCIS or worse in the future.

I wish you all the best for your MRI and in making your decision. 

Vicky x

Hi Kat, 

Really sorry to hear that you have been diagnosed with DCIS and have a big decision to make. Hopefully the MRI will reveal no hidden nasties and then you will have all the information to make the right decision for you. 

I was diagnosed with 24mm DCIS intermediate grade back in Feb. MRI showed nothing extra and I opted for lumpectomy. Pathology upgraded it to high grade but had clear margins so that was a positive. I am also having five rounds of radiotherapy starting 12th July. My mum also had breast cancer (invasive) but no other family history. I'm 44 so young-ish but would definitely opt for mastectomy if I ever had any further DCIS or worse in the future.

I wish you all the best for your MRI and in making your decision. 

Vicky x

Hi Vicky

Thank you for your response. I am so pleased that they managed to get clear margins & fingers crossed with the radiotherapy that will be the last of this horrible disease. It is such a young age to be having to through this & i sympathise with you.

Good luck & let me know how everything goes

xx