The Maggies meeting were in the day but only once a month. Like you, I can't really go out in the evenings as I've got children. 

Mine filled itself up about a week after surgery. First noticed when walking up the stairs. Warning about it would have been good though. Did end up having a good giggle on the phone with BCN. 

Ahhhh right! Did it go away by itself? Bonkers isn't it? 

my cavity has been deliberately filled with saline to keep the cavity from healing up. if (big if) my results are clear then they'll take some tissue from my back, twist it round and tuck  it into the cavity via my original  scar . Which will be the fourth time my scar has been cut . Heaven only knows what that's going to look/feel like. But ... need the results first. A lot of ifs/buts to think about 

Mine absorbed back into my body after about a week. I find it so strange how different places do things so differently. I'm in Surrey. Where are you? X

Wow, weird isn't it? Bodies are strange. 
 

i didn't have any issues with my first two lumpectomies. This time I'm purposely filled with saline - stsge 1 - so I can have the stage 2 partial reconstruction (LICAP) . 

I'm in Manchester - where pathology results are taking forever! Ive had 14 trips to the hospital.. and counting. I'm getting real moments of anxiety just driving there. It's always bad news. How are you coping with the ongoing changing of goalposts. 
 

x

Here it seems being told lumpectomy then radiothetapy. Then asked if willing to join the optima trial. No firm answers. Just more wait and see. Sorry for the language but *** TELL ME!

So many mixed messages. I'm done. 

Quite drunk now as starting to feal like the only way O can sleep!

[@Laineybug]‍ [@Flossyn]‍ 

Hi, sorry to find you on here.  I'm so sorry that you have had to go through this and haven't had the certainty of clear margins.  Three lumpectomies is certainly a lot to go through, coupled with all the uncertainty. 

I had a similar diagnosis back in January after clustered calcifications were found as an incidental finding on mammogram for a cyst.  It turned out to be Grade 1 IDC which they told me at the time was so tiny at 1mm that they were amazed the pathologist had picked it up.  Then, just before a scheduled lumpectomy everything was cancelled when they re-read my mammogram and more calcifications were found.  They turned out to be another area of low grade DCIS.  I was told that they weren't worried about me at all!!!  I don't want to think about what may have happened if they hadn't re-read my mammogram!
 

Roll forward to March when I had a mastectomy.  Post op histology showed that things were much more extensive than the original biopsy had shown AND LCIS was found which I wasn't told about.  Thankfully it was all staged at 1 with no lymph and vascular spread.  Given the outcome for me I was still so grateful I had the mastectomy as it gave me reassurance that everything was gone.  Calcifications can hide, especially if you have dense breasts.

My view is that everyone should be offered an MRI before they have to make the difficult decision to have lumpectomy or mastectomy.  Personally I've found it all to be a bit of a lottery!   Unfortunately I wasn't given one, but I can see how extensive calcifications will be very hard to remove with safe margins.  It's a very personal decision but my advice would be ask for further scans so you can make that judgement.  They may refuse but there is the option of a private scan if you feel that is appropriate for you.  
 

You have been through enough and another surgery must give you the peace of mind that everything has been safely removed.  
 

I've never regretted my mastectomy but it has been hard to come to terms with and I haven't had reconstruction either as I wanted everything to settle and see how I went first.  The surgery was fine and I had very little pain.

My experience has been that questions aren't always welcome and that protocols are adhered to and that doesn't always mean you get the reassurance you need with scans.  We need to trust our team but also be an advocate for our own health.  Unfortunately things can be missed.

I hope a third lumpectomy is successful for you and that you get the reassurance you need.  It's awful to continue to have so much uncertainty. 

Wishing you all the best with everything.  It's tough going but you will get through to the other side. x

Same here. Diagnosed 29 March with grade 3 TNBC. Have had 2 lumpectomies but no clear margin because of DCIS around the invasive cancer. They are now recommending a third lumpectomy which would be 27 July then 3 weeks for results so, if I do this, I won't start chemo until end of August/Sept - 5 months after diagnosis, so much for catching it early. And they won't let me speak to the oncologist to understand the risk of this additional 6 week delay. They will only let me speak to an oncologist if I give up on my boob and say I will have a mastectomy. This is nuts. The surgeon doesn't know the risk. I am being asked to trust an oncologist who has never met me and who can't even pick up the phone to explain why they think this is an acceptable risk. And I've been all this time with no one to talk to about my cancer, the only information I have has come from the internet. This rule doesn't apply when you are on potentially your third lumpectomy and over 3 months into cancer with no real information. If I do have a third lumpectomy, even if they get a clear margin this time, it won't mean anything because they don't know if there is more DCIS elsewhere they haven't seen yet so what is the oncologist waiting for? There's so much delay built into the NHS "pathways" and they are applied too rigidly.