Hi, sorry to find you on here.  I'm so sorry that you have had to go through this and haven't had the certainty of clear margins.  Three lumpectomies is certainly a lot to go through, coupled with all the uncertainty. 

I had a similar diagnosis back in January after clustered calcifications were found as an incidental finding on mammogram for a cyst.  It turned out to be Grade 1 IDC which they told me at the time was so tiny at 1mm that they were amazed the pathologist had picked it up.  Then, just before a scheduled lumpectomy everything was cancelled when they re-read my mammogram and more calcifications were found.  They turned out to be another area of low grade DCIS.  I was told that they weren't worried about me at all!!!  I don't want to think about what may have happened if they hadn't re-read my mammogram!
 

Roll forward to March when I had a mastectomy.  Post op histology showed that things were much more extensive than the original biopsy had shown AND LCIS was found which I wasn't told about.  Thankfully it was all staged at 1 with no lymph and vascular spread.  Given the outcome for me I was still so grateful I had the mastectomy as it gave me reassurance that everything was gone.  Calcifications can hide, especially if you have dense breasts.

My view is that everyone should be offered an MRI before they have to make the difficult decision to have lumpectomy or mastectomy.  Personally I've found it all to be a bit of a lottery!   Unfortunately I wasn't given one, but I can see how extensive calcifications will be very hard to remove with safe margins.  It's a very personal decision but my advice would be ask for further scans so you can make that judgement.  They may refuse but there is the option of a private scan if you feel that is appropriate for you.  
 

You have been through enough and another surgery must give you the peace of mind that everything has been safely removed.  
 

I've never regretted my mastectomy but it has been hard to come to terms with and I haven't had reconstruction either as I wanted everything to settle and see how I went first.  The surgery was fine and I had very little pain.

My experience has been that questions aren't always welcome and that protocols are adhered to and that doesn't always mean you get the reassurance you need with scans.  We need to trust our team but also be an advocate for our own health.  Unfortunately things can be missed.

I hope a third lumpectomy is successful for you and that you get the reassurance you need.  It's awful to continue to have so much uncertainty. 

Wishing you all the best with everything.  It's tough going but you will get through to the other side. x

Hi, sorry to find you on here.  I'm so sorry that you have had to go through this and haven't had the certainty of clear margins.  Three lumpectomies is certainly a lot to go through, coupled with all the uncertainty. 

I had a similar diagnosis back in January after clustered calcifications were found as an incidental finding on mammogram for a cyst.  It turned out to be Grade 1 IDC which they told me at the time was so tiny at 1mm that they were amazed the pathologist had picked it up.  Then, just before a scheduled lumpectomy everything was cancelled when they re-read my mammogram and more calcifications were found.  They turned out to be another area of low grade DCIS.  I was told that they weren't worried about me at all!!!  I don't want to think about what may have happened if they hadn't re-read my mammogram!
 

Roll forward to March when I had a mastectomy.  Post op histology showed that things were much more extensive than the original biopsy had shown AND LCIS was found which I wasn't told about.  Thankfully it was all staged at 1 with no lymph and vascular spread.  Given the outcome for me I was still so grateful I had the mastectomy as it gave me reassurance that everything was gone.  Calcifications can hide, especially if you have dense breasts.

My view is that everyone should be offered an MRI before they have to make the difficult decision to have lumpectomy or mastectomy.  Personally I've found it all to be a bit of a lottery!   Unfortunately I wasn't given one, but I can see how extensive calcifications will be very hard to remove with safe margins.  It's a very personal decision but my advice would be ask for further scans so you can make that judgement.  They may refuse but there is the option of a private scan if you feel that is appropriate for you.  
 

You have been through enough and another surgery must give you the peace of mind that everything has been safely removed.  
 

I've never regretted my mastectomy but it has been hard to come to terms with and I haven't had reconstruction either as I wanted everything to settle and see how I went first.  The surgery was fine and I had very little pain.

My experience has been that questions aren't always welcome and that protocols are adhered to and that doesn't always mean you get the reassurance you need with scans.  We need to trust our team but also be an advocate for our own health.  Unfortunately things can be missed.

I hope a third lumpectomy is successful for you and that you get the reassurance you need.  It's awful to continue to have so much uncertainty. 

Wishing you all the best with everything.  It's tough going but you will get through to the other side. x