Newly diagnosed and terrified

I'm Sarah and I'm 51. After some back ache and tummy pain I went to A&E a few days ago. 

After an initial examination Dr decides to do blood gases which showed elevated pancreatic enzymes. Assumed I had pancreatitis.

Admitted to ward overnight, had CT scan the next morning. Partner and I were spoken to and told there was an abnormality on the end of my pancreas. It is less than 2cm and it has not spread anywhere else. They were unsure what it was but warned it may be cancer. 

CT scan seen by specialist the next day who advised it is cancer. Unable to operate due to main arteries. So have to have chemo and hope it shrinks enough to remove it.

They called it an accidental find... the cancer cells were pushing on a nerve in my spine causing back ache, this was pure luck as otherwise I would have had no pain at all and not even known I had cancer. It would have been a couple of years before symptoms and by then too late to do anything. 

Am now waiting for for endoscopy and biopsy of the area to find out what kind of cancer and what stage.

I'm utterly terrified. I'm being horrible to my boyfriend and pushing him away and not allowing him to support me. One minute I am ok and the next I'm crying. 

I've told one of my grown up children but still waiting to see and tell my other two.

Been googling and pancreatic cancer has one of the worst survival rates... its pretty dismal

How do I cope with this? I don't know how to cope day to day and be normal ? 

  • Hello 

    Sending you my best wishes x

    I'm being monitored so a bit different, but anything pancreatic related is so scary. 

     

  • Hi Sarah,

    This is very upsetting news and im really sorry to you and your family are having to deal with this. Hopefully you are supporting each other at this time although i know it can be very hard and put a tremendous strain on yourselves.

    You are right the outlook for pancreatic cancer is typically very poor but you have a couple of things going for you. You are young for the age of diagnosis and it seems to have been detected at an earlier stage. AFAIK most people diagnosed with pancreatic cancer are in their 80s and its almost always detected at stage IV where there is very little that can be done.

    I know its a hard task but please try to keep a positive frame of mind if you can and keep looking forward, you are definitely strong enough to deal with this especially with your family beside you. I think communicating with your family and letting them help you is really important even though its so hard to do.

    Please take care and definitely make use of the forum it can be a much easier way to vent then with people offline

     

  • Hi Sarah, 

    That's horrible news to get and it's ok to panic and lash out and the best therapy of all to cry. Don't keep it in. I hope your boyfriend lets you off with pushing him away as you'll need his support.

    Only natural your head's all over the place right now and it's completely understandable, you've just had a big shock. But you'll find you learn to cope better day by day and the feelings of panic will lessen. You feel more in control once on treatment, I call it fighting back. And they'll want you starting chemotherapy as soon as possible. Lots of different chemo drugs available so I can't help with what you'll be on. 

    The best thing I'd say you can do meantime is getting outside and walking. It's great for stress and somehow being outside is more calming. The worst thing you can do is staying in googling everything about it, that just adds to your stress and you really don't need that right now. 

    Let the hospital get on with sorting out your treatment plan and you concentrate on you please and trying to process the shock. And telling your other children. And get lots of hugs if you like them, they help too. 

    Good luck Sarah and keep posting here for support but take it one step at a time. 

     

  • Thank you, I talked more to my mum today and told about my fear of leaving my kids and partner. She was very supportive, it's late at night I feel alone and worried about what is to come lots of love to you  

  • Thanks for your reply, just knowing someone understands makes it a little better. 

    Lots of love  

  • You're more than welcome Sarah. My chemo worked btw, stay hopeful.

    And lots of love to you too ♥️