What do you tell your child after diagnosis

Got diagnosed today with breast cancer and have to have a mastectomy, which will be happening soon.  How honest are you with your children? Obviously I'm going to have to tell them I'm going to hospital and having an operation (they are very observant and don't miss anything)! My worry is close family member died of breast cancer, so don't want to scare them and cause unnecessary worry, but at the same time want to be honest with them and not cause them issues trusting what people say in the future. Did anybody tell their kids cancer from the beginning or wait out further down the line? Appreciate all stories and kids are different,  but hopefully people who have had to have the conversation or wished they had can share their experiences.  Thanks  

Parents
  • This is the hardest conversation but you will find the best way to do it for your own children and it is likely to go better than you think ️ Sharing my own experience my kids are teenagers but I was really worried as we have lost friends young to cancer 

    I took a tip from one of those friends -

    write a

    script. This allows you to be on the same page and to share exactly what has been told / key messages with other relevant adults .

    so they don't get slightly different info from different people. This will happen anyway but if you give the message that you're sharing the key messages people might think twice before saying something inappropriate. 
     

    by writing a script my husband and I were able to think through - what shall we say if they ask this or what shall we say if they ask that? We wanted to be honest but also not to bamboozle them with unnecessary details eg they wouldn't understand about different receptors on breast cancer etc 

     

    looked at some info from macmillan too on what to tell different age groups .i also spoke to my GP. She said be honest but don't look too far ahead. For example if it is xonsidered treatable now there's no need to jump in and talk about your own natura concerns about the future -

    focus on it's treatable now. 

     

    that allowed us to have the convo about what's appropriate and not appropriate to share 

     

    we didn't really use the script and my husband shared some detail we hadn't agreed (inadvertently) but overal I think the conversation did go a lot better than if we hadn't had a script.z we then shared very clearly the 3 key messages we had told the kids with other close family adults. 
     

    now it's just evolved and we are a bit lax and we probably need to revisit this so thanks for making me

    think! 
     

    Wishing you all the best . Sending hugs ️

Reply
  • This is the hardest conversation but you will find the best way to do it for your own children and it is likely to go better than you think ️ Sharing my own experience my kids are teenagers but I was really worried as we have lost friends young to cancer 

    I took a tip from one of those friends -

    write a

    script. This allows you to be on the same page and to share exactly what has been told / key messages with other relevant adults .

    so they don't get slightly different info from different people. This will happen anyway but if you give the message that you're sharing the key messages people might think twice before saying something inappropriate. 
     

    by writing a script my husband and I were able to think through - what shall we say if they ask this or what shall we say if they ask that? We wanted to be honest but also not to bamboozle them with unnecessary details eg they wouldn't understand about different receptors on breast cancer etc 

     

    looked at some info from macmillan too on what to tell different age groups .i also spoke to my GP. She said be honest but don't look too far ahead. For example if it is xonsidered treatable now there's no need to jump in and talk about your own natura concerns about the future -

    focus on it's treatable now. 

     

    that allowed us to have the convo about what's appropriate and not appropriate to share 

     

    we didn't really use the script and my husband shared some detail we hadn't agreed (inadvertently) but overal I think the conversation did go a lot better than if we hadn't had a script.z we then shared very clearly the 3 key messages we had told the kids with other close family adults. 
     

    now it's just evolved and we are a bit lax and we probably need to revisit this so thanks for making me

    think! 
     

    Wishing you all the best . Sending hugs ️

Children
  • Thank you, trying to keep it to a minimum to people who know at the moment to avoid slips in conversations! He's so observant, noticed bruises from biopsies etc! Only going to tell him stuff I know (which at the moment isn't a lot), but more conversations to be had as time goes on. Waiting for test results to see if I need chemo or straight mastectomy. Think that's when the questions will come, thanks for replying