Advice regarding wigs!

Hello, wanting any help regarding wigs please, I have recently undergone right mastectomy followed by full axillary clearance, I have been told I will need some chemo & radiotherapy as preventative, I have my scan on Wednesday then presume will see an oncologist afterwards, should I start sourcing wigs now or wait till I’ve seen the oncologist and see what type of chemo etc, not looking forward to the chemo at all but want to be prepared, any info/advice would be much appreciated

  • Hi Halley,

    I actually was referred by my Breast Care Nurse for my wig, and was given a wig from the NHS, I have had FEC-T I'm actually having my last one on Thursday. I used the cold cap but my Friend who is having the same treatment as me and she lost her hair after her second round but I know everyone is different.

    I would definitely chat too your Breast Nurse and see what she suggest. 

    I wish you well Love Sarah 

  • Hello, thank you for your lovely reply I'm not sure what I will be having yet until I have seen an oncologist,I have heard about cold caps but not sure how effective, I have resolved that I will wear a wig that hopefully resembles my own hair, it's all very daunting especially after going through 2 lots of surgery and having the worry about what chemo will be like much appreciated and thank you x

  • Hi Halley,

    No problem, the wig I had from the NHS was fine but I know my friend bought her own, your right best wait too see what your Oncologist says first.

    If your having Chemo, it's very do-able and not as bad as you may think, the Side effects for me last around a week after my treatment and they are Manageable. 
     

    Take care Sarah 

  • Hi Halley.  Speak to your nurse and they will give you some really good advice about wigs and scarves and hats.  I lost all of my hair and I bought my own wig for 25 pounds which looked exactly like my own hair.  I refused the cold cap treatment becaue other people I spoke to who had had it said that it didn't stop their hair falling out, but of course the decision must  be yours.  Also Halley, I was very worried about the chemo, but honestly, it was nowhere near as bad as I thought it would be.  Good luck, xx

  • Hi Sarah 

    It's so good to hear someone say that Chemo is doable. I'm due to start in a few weeks and have been absolutely petrified after reading so many horrendous stories on loads of different forums.  Makes me feel a bit more positive going into it, was almost ready to say no to it. 

    Did you lose all your hair after the cold cap or did you get to keep some? I'm off to choose a wig next week.

    Thanks 

  • Thank you for your lovely reply! Hopefully see oncologist soon and speak to a nurse, think it's the fear of the unknown,I'm currently fit & healthy even after 2 surgeries and dread feeling awful and being laid up as well as the losing hair side of it, I'm in the mindset now of let's get on with it, sooner I start sooner it's finished, thanks again

  • Hi L,

    Well the Cold Cap is pretty Tough, but for me I wanted to do it to protect the Children and try to keep things as normal as possible,. The cold cap for me has been a success, if you can get through the first 10 mins the rest is fine, it does extend the time you are at Chemo though. I do have a bold patch in the top of my head because my head is so small the Cap didn't quite fit, I had big thick long hair and I would say It has thinned out a lot but you wouldn't notice it. 
     

    Everyone is different and don't get me wrong Chemo is tough, but once you get the first one done and know what your side effects will be the others for me where the same so I was able to manage them with my Team well,, I changed to Docetaxil for the last 3 and the side effects were different but again manageable. 
     

    I had a Pic line In my arm, you don't feel it and it speeds everything up, also I would go once a week to have it re dressed, this Gave me the Chance too see the nurses which really helped. Let me know if you need any advice 

    i hope you manage it okay, I am sure you will, love Sarah