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My husband  has been diagnosed  with cancer of ureter He had bladder cancer 6 years ago which was successfully treated he has had repeated uti's and investigations showed the cancer in the ureter His kidney function is reduced so surgeon says removal ok kidney and ureter not an option He removed all visible cancer in ureter placed a stent and is testing husband's blood to see if this has improved gfr He says as long as cancer returns inside the ureter he will remove it  but once it gets outside there is no treatment Needless to say we are devastated

My husband is 79 and apart from high blood is well and fit He cycles weather permitting and we both go to the gym He feels well especially since the stent has cleared the blood and bacteria from his urine

I feel so sick we only got the news last night and it's just sinking in

Wilbert 

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    Hi Wilbert,

    Welcome to our forum.

    I am so sorry to hear of your husband's situation. This must have left you both devastated. One thing that I have discovered in my 12 year journey with 2 bouts of breast cancer, is that there is no point in worrying about 'what ifs' - life is too precious to waste on what might never happen. Instead look on the positives and seize the day. It is good news that he is managing better with the stent. Try to make the most of each and every day and make memories where you can.

    Please keep in touch and let us know how you get on. We are always here for both of you.

    Kind regards,

    Jolamine xx

  • Thank you so much My husband's case is going to mdt and we are hoping the oncologist may have suggestions  I've found some good information here about treatment options We are also hoping  the bloods yesterday will show an improvement in his kidney function Once the stent was in he passed  just over a litre of urine which had obviously been backing up It was constant uti's which has led us to were we are now 

    Thanks again Had his 4th booster today so we combined it with breakfast out at one of our favourite restaurant 

    Best wishes

    Wilbert x

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    Hi Wilbert,

    Maybe you just caught him on a bad day? It is often a good idea to write down any questions you have for your consultant before you attend your appointment. I usually go with 2 sets of questions - 1 for my husband and 1 for myself. As I ask the questions, he writes down the answers. This has been so helpful, as we don't forget to ask important questions and the consultant can't overlook questions he doesn't like.

    It will certainly do no harm to ask for a second opinion and you are perfectly within your right to ask for this.

    Kind regards,

    Jolamine xx

  • I took list of questions first visit but was expecting good news this time  I  have a long list for next visit Good idea to take 2 pads husband can ask and I will write the answers 

    Thank you so much 

    Wilbert x

  • Hi Wilbert,

    I and many others on this forum find this helpful.

    Do please keep in touch and let us know how you get on.

    Kind regards,

    Jolamine xx

  • Will do 

    thank you 

    Wilbert xx

  • We have been thrown a lifeline Surgeon rang my husband's kidney function has improved since the stent was fitted and he now feels removal of the kidney and ureter is viable He is transferring my husband to his NHS list at a large teaching hospital not too far from where we live in Manchester Obviously lot of tests etc before surgery and the prospect is scary But hey live to fight  another day 

    Thank you for your helpful replies

    Wilbert 

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    Hi Wilbert,

    This sounds a lot more hopeful. Yes, there are bound to be other tests prior to any procedure and the prospect of surgery is always scary, but it's great to hear that this is a possibility again. I hope that this will be carried out soon, thus helping to reduce your anxiety. 

    Please keep in touch and let us know how he is getting on and remember that we are always here for you.

    I am hoping and praying for a good outcome.
    Kind regards,

    Jolamine 

  • Thank you so much my anxiety levels are much reduced and I can look at the sweet peas we put in last week without wondering if my husband will see them flower 

    Very best wishes 

    Wilbert x

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    Hi Wilbert,

    i am delighted to hear that you are feeling less anxious now. If your sweet peas are growing like mine, he'll definitely be here to see them flower.

    It's so good that you've got some positive results.

    Kind regards,

    Jolamine 

  • Mr W had a scan on Friday at Dept of nuclear medicine This morning we had a phone call asking us to attend an appt to see the consultant  this Friday 

    Didnt expect things to move so quickly I'm terrified it's bad news 

    Wilbert 

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