How long do I need to wait from diagnosis to WLE?

Morning all

I have been diagnosed with a thick 5.3mm acral lentiginous melanoma in my thumb nailbed. The positive biopsy was done on 1st Feb, I had full body CT scan on 11th March, and head MRI on 15th March, then yesterday 16th March I saw the plastic surgeon for the first time. He has said that they can't say yet whether surgery to remove my thumb will be a treatment option until they have the scan results back. He said that if the scan results come back clear he will put me on his list for surgery in about 14 weeks .... my question is, surely this is too long to wait when I have an invasive and already deep tumour on my thumb? 

Is there anything I can do to speed this process up?? I am terrified and feel as though they are just going to potentially leave it until it is too late to treat surgically :(

Thanks for listening, any advice and support would be appreciated x

  • Hello Debbikins

    I'm sorry to hear about your diagnosis. It's understandably a difficult time and natural that you will be feeling anxious about the upcoming surgery and potential waiting times. I think many of our members here will understand how difficult this period of uncertainty and waiting can be. It's good to see that you've already been able to connect with another lady who has the same diagnosis on the forum. 

    Hopefully the scan results will come back with some positive news for you soon and then you will have a firmer idea about the next steps. It can be difficult coping with waiting but I'm sure the team will do their best to get you seen as soon as they can based on all the clinical information and expertise that they have. You may want to let them know if you're able to attend for surgery at short notice in case they have any cancellations. There's certainly no harm in asking. 

    In the meantime I'd suggest giving our team of nurses a call to talk things through with them. I'm sure they will be happy to offer any advice and support that they can ahead of your next appointment. If you'd like to chat with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    Keep in touch Debbiekins and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator