Hi Manfyh, 

Your post caught my eye- ANYTHING mentioning Oesophageal gets me 'interested'- WHY? My then 56 yr old husband diagnosed with it July 2020. I say THEN 56, not because he's popped off, but because he is now 57 and 1year since completion of treatment and disease free ( big clapping emioji's) for now ( I always add that, not to tempt fate!)

The reason I post is that I know EXACTLY, how you are feeling right now, all human emotions experienced in the same hour, let alone day. Utter frustration and wanting answers - like NOW!!
 

Jenn moderator gives you absolute solid advice, your husband must be registered with a GP , and if your husband is already diagnosed then he will have gone through that process with a consultant and team doing the work- our oesophageal team nurses were an abosolute godsend through it all. Usually referred to as a 'multidisciplinary team'

I have to say though, 4 weeks isn't that long - although I know all to well that you want it to start like RIGHT NOW. we started chemo after 5 /6 weeks, but they were very 'quiet' due to covid (every cloud n'all). Most of the people I have 'chatted' with on here were 8-12 weeks.

THE THING about  oesophageal cancer is that it is very complicated and they take a while to get to the staging decision, do every investigation almost known to man! From that then comes the treatment plan- and there is a Heinz variety of them depending on staging.

I could go on and on and on.............but I won't.

Start with his GP & good luck- ask anything you want.

hilts

Thankyou, just having a response means the world to me right now, we have no consultant only doctors names we think it might be as no one is telling us anything.

I got in from work today and he was just lying on the sofa, barely able to lift his head, he hadn't been able to keep any liquid down, not even water, I called everyone under the sun, GP, 111, (oncology, GI nurses (all unavailable), I was told to call an ambulance as he needs fluids, stubborn buggar refused. 
he had taken himself to A n E earlier in the day and they said we have a bout of Norvo virus, we should admit you but best you be treated at home, packed him of with omeprazole and some anti sickness tablets, he can't even swallow water!

All my phoning must have caused a problem as next min the GI nurse is calling to say he needs admitting, so I drive him to hospital where hopefully he gets some fluids and flipping foid as he is literally starving xx

sorry for the rant, I just didn't know who where or what to do xxx

Hi Manfyh

I'm so glad to hear that you've finally been able to get some support for him. Let's hope now that he's been admitted that this will be the start of things moving in the right direction. 

I did reply to your previous post over the weekend and in that reply gave a link to another thread on the forum with lots of members who have experience of oesophageal cancer. Do have a look and introduce yourself to them when you feel able to. They're a lovely supportive group of people who have lots of experience and expertise from a patient perspective. I can see that [@Hilts]‍ has already posted a message on this thread :happy:

Keep in touch Manfyh. Happy to lend an ear for you to rant into if needed. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hi Manfyh

I'm so glad to hear that you've finally been able to get some support for him. Let's hope now that he's been admitted that this will be the start of things moving in the right direction. 

I did reply to your previous post over the weekend and in that reply gave a link to another thread on the forum with lots of members who have experience of oesophageal cancer. Do have a look and introduce yourself to them when you feel able to. They're a lovely supportive group of people who have lots of experience and expertise from a patient perspective. I can see that [@Hilts]‍ has already posted a message on this thread :happy:

Keep in touch Manfyh. Happy to lend an ear for you to rant into if needed. 

Best wishes, 
Jenn
Cancer Chat moderator