Hubby's waited 4 weeks & still no treatment. What do we do?

Hi all, my hubby was diagnosed only 5 weeks ago with Esophageal Cancer, he works in the Middle East and was diagnosed there after many tests. He arrived home 4 weeks ago and was referred to the hospital, since then he has had a repeat of all the tests he has whilst abroad but not. Been seen or spoken to by a doctor, a nurse saw him and said what she thought would happen treatment wise, we are now nearly 4 weeks in of waiting. I have tried all diff secretaries of different specialists and either get answer phone or they will get back to us, I know we aren't the only ones but 4 weeks of just waiting is starting to take its toll, what do I do xx

Parents
  • Hello Manfyh

    I'm sorry to hear about your husband's diagnosis and the delays that you've experienced since he returned home to the UK. It's understandable that you're feeling anxious about the wait. 

    I'd suggest getting in touch with the hospital PALS team if you've still not heard anything. It's their role to provide a point of contact for patients and their families and to help resolve concerns or problems. 

    It's also worth getting in touch with your husband's GP and letting them know about the delays that you're experiencing. It may be that they're able to give you some information about which Consultant is responsible for your husband's care or which team he's been referred to. 

    If you'd like to talk things through with one of our nurses you're welcome to contact them for some advice and support. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040 and I'm sure they will be happy to help in any way they can. 

    I'm also going to suggest that you might want to have a read through some of the posts on this thread and maybe consider posting a reply there to introduce yourself. The members on that thread all have experience with/of oesophageal cancer and are a very supportive and knowledgeable group. 

    I do hope that things start moving quickly for you both soon. 

    Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator  

Reply
  • Hello Manfyh

    I'm sorry to hear about your husband's diagnosis and the delays that you've experienced since he returned home to the UK. It's understandable that you're feeling anxious about the wait. 

    I'd suggest getting in touch with the hospital PALS team if you've still not heard anything. It's their role to provide a point of contact for patients and their families and to help resolve concerns or problems. 

    It's also worth getting in touch with your husband's GP and letting them know about the delays that you're experiencing. It may be that they're able to give you some information about which Consultant is responsible for your husband's care or which team he's been referred to. 

    If you'd like to talk things through with one of our nurses you're welcome to contact them for some advice and support. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040 and I'm sure they will be happy to help in any way they can. 

    I'm also going to suggest that you might want to have a read through some of the posts on this thread and maybe consider posting a reply there to introduce yourself. The members on that thread all have experience with/of oesophageal cancer and are a very supportive and knowledgeable group. 

    I do hope that things start moving quickly for you both soon. 

    Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator  

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