Surgery for breast surgery

Ok, scared now. I have breast cancer. Surgery booked for Mondy (28th). Radiotherapy and menopause inducing drugs to come. Anyone been in the same situation got any advice? Please!

 

Update - now waiting for surgery number 3! They found more cancer (15mm grade 2) and an affected lymph node (now 2 out of 7) during surgery 2. My treatment plan after surgery (if successful) has yet to be discussed. If surgery 3 doesn't come back clear, a mastectomy may be the only option. Had enough of this now. The waiting is getting me down. The not knowing whether chemo is needed or not is taking over my head. Struggling to get motivated.

Surgeon and cancer nurse have mentioned the optima trial - just adding to my things to think about. Anyone have any thoughts? 

  • I take my husband with me but we both forget to ask the questions. I was stunned when we went last time - wasn't expecting them to say more was found. Just sat there nodding. I have a little notebook now that I keep in my bag. Everytime I think of something, I write it down. 

    I've tried speaking to cancer nurses and they are really lovely and supportive, but don't have answers.  

    Just over 2 weeks to wait now. As long as results come back in time... the waiting really sucks!

    How are you getting on? Feeling ok?

     

  • Thats me haha,  always remember I was supposed to ask this and that once I'm back home .

     

    It's a bit unusual for the BCN not to know anything though , as I found mine knew the answers when I asked questions, I do leave the asking of questions to my partner though as I don't really like speaking on the phone , the BCN are good tho because o ce they phone me to tell me something they ask if they should phone my partner to tell her .

     

    I'm ok thank you , tired but I suffer M.E so thats a usual occurrence for me , I am expecting my results of the latest CT scan to come through at some point this week which I am dreading and really hoping its good news but I can if you wish let you know once I do get the results? X

  • Lot of similar stories to mine, here. (Have also posted to Macmillan forum). Just in left breast with two cancers, 9mm grade 2 invasive and then a smaller tumour, but both cancerous both with DCIS present and less than 1mm from margins. Right breast and lymph nodes clear thankfully. Offered MRI guided re-excision or mastectomy, either flat or with reconstruction, which I have gone for. However after meeting with microvasular plastic surgeon, I have been told that I am not suitable currently for flap reconstruction, so have asked for implant reconstruction instead -It feels terriblylike I have had a long wait for appt at clinic with lovely surgeon to discuss this on this coming Wed and I am really really hoping for a date for the mastectomy, one way or another. Then there will another fortnight waiting for the histology / pathology results to see if I need to see oncologist, for further treatment decisions, other than the hormone therapy which will definitely happen. I'm "fine!"

  • Haha I'm 'fine' too!

    Beginning to wish I'd just gone for mastectomy in the first place. Will probably feel different if it turns out I don't require any further surgery though...

    Good luck for Wednesday. Fingers crossed you get a date sorted.

    Nx

  • I'll be thinking of you with fingers crossed for good news. Only share if you want to though. X

  • Thanks!  Will let you know!  Hope all goes ok, for you - the waitng sucks, doesn't it?

     

  • It really does. I hate it. I'm getting tetchy all the time. I got really upset when they cancelled my results appointment the day before I was due to go in - results weren't back. At least they called and let me know instead of getting there and then turned away. Really hoping it doesn't happen again this time.

    And no I'm not a 'tough cookie'! That phrase is starting to really irritate me :) x

     

  • Will do  snd keep me informed of your news too please x

  • I would like to know how you are feeling. The end of treatment can be difficult, I found that any way.

  • Hi lovely, 

    Sorry for the very late reply not been on here for quite some time. I'm currently sat having my final chemo, hooray, and have my axillary clearance booked for 14th July. 

    How are things you you?

    Kaye xx