Hi 

I hope you don't mind me asking why you were given chemo tx ? You had clear margins and no lymph nodes? What type of cancer was it? 
 

I have to go for 2nd op to get clear margins on my 18mm her2 pr/er positive Tumour and I'm anxious I may need chemo as there is an unclear margin all be it very small

i hope you are keeping well now 

lucy x 

I believe it's because I have invasive lobular breast cancer. My oncologist said it was that although there were clear margins there could be the odd cancerous cell floating around so it was a belts and braces approach to ensure it doesn't return.

That would make sense

how did you discover it as I think it's harder to detect isn't it? 
so pleased u did tho and your ok x 

I found the lump myself. 
 

I have now done 4 of the 6 chemos and coping ok. Next up is radiotherapy! I have been lucky as I am able to take a week off after each round of chemo and then back to working from home for 2 weeks. 
 

But I will definitely be relieved when the invasive type treatment is over and my hair starts returning!!

Hi, it's been a while. How are you doing?

I had my 3rd surgery yesterday. They found more grade 2 cancer and another dodgy lymph node in my 2nd and margins were still not clear. Now the 3 week wait for results...

Hi,

It certainly has been a while .

Sorry to hear you've had another surgery though :-(

I'm ok I guess, suffering with my mental health .

Have had 2 more CT scans , one in March and one the end of May , when I had a CT scan last year they found what I think they call a lung nodule,  they said it was an area of concern. 

Well in March they said the CT scan showed the lump had changed , they didn't know what it was still but I'd need another CT scan 3 months later which is why I had one the end of May, I think the results are due in the end of next week .

Hope you're OK?

The waiting game is the worst part and you must also be going nuts with waiting.

I am very surprised that  CT scan hasn't been mentioned to you though . 

When they realised the cancer was more advanced than they first thought the first thing they suggested was a CT scan and a bone scan , bone scan came back clear .

The fact you needed a third operation but not offered chemo or radiotherapy is a bit puzzling .

When they diagnosed me with stage 3 breast cancer they at first said it was stage 2 but after the first operation and realising it was bigger than they thought and had spread to 13 of the 18 lymph nodes removed and having to have the 2nd to get clear margins they told me there and then that I'd need bone scan and CT scan plus so many sessions of chemo and radiotherapy plus hormone blockers,  neither I might add have I taken. 

Maybe different areas do things differently? I'm in the south west of UK. 

You also keep in touch x

I'm in south east.

After my biopsy, they told me it was stage 1. They've never told me any different. The cancer removed was grade 2 and grade 3 (3 different lumps). 2 out of 7 lymph nodes affected. 

Perhaps it's different because of stage/area/hospital... who knows. Doesn't help with the worrying though. I'll add it to my note book and ask when I see surgeon in a few weeks.

X

Still sounds strange, write a list of what you want to ask , I always find I'm dumbstruck at the time and think of questions long after so usually take my partner and she asks all the questions   x