Surgery for breast surgery

Ok, scared now. I have breast cancer. Surgery booked for Mondy (28th). Radiotherapy and menopause inducing drugs to come. Anyone been in the same situation got any advice? Please!

 

Update - now waiting for surgery number 3! They found more cancer (15mm grade 2) and an affected lymph node (now 2 out of 7) during surgery 2. My treatment plan after surgery (if successful) has yet to be discussed. If surgery 3 doesn't come back clear, a mastectomy may be the only option. Had enough of this now. The waiting is getting me down. The not knowing whether chemo is needed or not is taking over my head. Struggling to get motivated.

Surgeon and cancer nurse have mentioned the optima trial - just adding to my things to think about. Anyone have any thoughts? 

  • Hi Clarke that's not too bad then, im sure they will sort it for you .

    love Andrea

  • So a question for you and anyone else who can answer it for me........

    The surgeon got the cancer out during lumpectomy with clear margins, no spread to lymph nodes so do I still have breast cancer ?  

    Xx

  • HI. Feeling very anxious like you. I was diagnosed 4 weeks ago- lumpectomy this Wednesday 23rd,  radiothearapy and hormones to follow. It was all a complete shock- just a regular mamogram. I cannot praise enough for the care and reassurance I have received so far from health professionals. They will get me through this operation which is terrifing me at the moment. 

    2 ladies at work in the same position a few years ago are fine, healhy and out the other side. They are well and living life to the full again! I'm holding onto that to get though the surgery and move on! 

    Be strong, keep talking and be kind to yourself! xxx

  • Jenny,

    I’m nearly 4 weeks post op and my plan (hopefully) is the same as yours.

    It really is an anxious time but doable. Good luck with your operation on Wednesday x

  • I also had a lumpectomy (it was quite big - 4cm) with clear margins and no spread to lymph nodes (had a sentinel node biopsy during surgery).

    I now have 6 rounds of chemo (starts this week) and then radiotherapy as well as hormone treatment and Biophosphonate.

    The way my oncologist explained it to me is that although they had clear margins so had got all teh cancer out there might be a rogue cancer cell floating around hence the reason for the chemo. 

  • Hi sorry to jump on your post .

     

    I had a lumpectomy and axillary clearance last August,  they removed 18 lymph nodes and 13 was cancerous,  5 weeks later I had to have a re-incision because they didn't get clear margins,  luckily after the 2nd op they got clear margins. 

     

    I still suffer numbness under my arm , down one side of the arm and on the shoulder,  luckily I have full movement in that arm its just the numbness and the having to be careful of getting bites and scratches due to having no lymph nodes in that arm and of course now the summer is arriving having to make sure I wear high factor sun screen so not to get burnt. 

     

    I was supposed to have had chemo,  radiotherapy and hormone blockers,  I refused them all , my choice .

     

    I have a dented breast where the scar is and was told they could do plastic surgery to improve it but it doesn't bother me , I'm 51 and long since showed that part of my body to the world lol .

     

    I wish you luck in your recovery x

  • How you feeling about the chemotherapy Jett66? My biggest fear is needing it.

    I was so relieved when I was told my route would be surgery, radiotherapy and hormone treatment only to be told on Friday they have done an Oncotype test which will determine whether I’ll need chemo first. 

    So here I am again waiting for the oncologist appointment to find out the results.

    Thanks for explaining what your oncologist said. My husband has been so excited because the cancer is out and think he believes I’m completely better whereas I’ve been a lot more hesitant to celebrate just yet. 

  • My aim is to try and carry on as best I can but of everything its the chemo that is making me the most anxious. I think its because I dont know what to expect and no one seems to give much info as they say everyone handles it differently.

    It's hard to know what to do about work. Also, my son is Year 13 at school so want to try and be as normal as possibly (minus hair) to limit impact on his A levels.

  • I found making the decision about work the hardest thing as I’ve never been off before and am rarely ever ill.

    I teach primary aged children and have now decided that I won’t be going back until I’ve finished my treatment.

    This was the decision I came to after a nurse explained to me that covid hasn’t gone away and if I caught it my treatment would be delayed by 7 weeks. I’m not prepared to take the risk. I want all of this over as soon as possible.

    It is hard to carry on as normal when all I’ve wanted to do is curl up and stay in bed. I’m lucky my children are older so understand. Having my 3 grandchildren here help me forget what’s going on for a few hours as they keep me busy.

  • Hi.

    It must have been a hard decision. 

    I got a copy of a letter sent to my doctor about what was found.

    Had a 16mm grade 3 and a 24mm grade 2 invasive ductal carcinoma in 90mm of DCIS. 2nd surgery soon to try and clear margins.

    Only radiotherapy was mentioned before my 1st surgery but am now worried as they found grade 3 that I'll need chemo. Not sure what to do but guess no point fretting until I'm told...

    Hope you are keeping well xx