Hi Twinmum.

Really sorry to hear you have received this news today. Its OK to cry and you are not being vain at all. The idea of losing a part of you is totally terrifying and any breast surgery and cancer diagnosis no matter how early and treatable has a huge effect on a person mentally and physically.

What was it that changed the treatment plan for you? 

Be kind to yourself! You never have to apologise for how you are feeling.

Sending hugs x

Thank you for the reply. 

When I went to get my magseed ultrasound they ended up doing more biopsies as there was another area they weren't sure about which turned out to be cancerous too. I have 5 small areas over a section of my breast. I do have large breasts so hoping the reduction works out. Xx

So glad to hear you have your date! It's a relief to have the next milestone to get to. Keeping everything crossed for clear margins all round! 

We will be recovering together haha!!

And you're right....we can (and will) do this xx

Hi JYM, 

Thank you for your kind message. It's great to hear you are happy with your decision and got clear margins (even though it meant a second op).

Hope your healing continues well and you get back to your usual activities as soon as possible. Itching doesn't sound much fun tho!

Sending best wishes xx

Me to

Going to get magseed tomorrow then will need to get organised with what I'll need for after surgery. Having a look at bras but not got a clue. 

We will be able to keep each other going after our surgeries. 

We totally got this

Ooh let me know what getting the magseed is like. I'm having mine put in on Monday.

I saw breast nurse today and she fitted me and gave me a compression bra that I have to wear day and night (except when showering obs) for a week to 10 days after the surgery. I've ordered another similar one as one bra for that long would be pretty rank haha. She also gave me a couple of heart pillows and a few other bits.

Do you have a nurse appointment before your surgery date? If not I would give them a call and see what they do at your hospital.

Sending hugs xx

I'll definitely let you know what it's like. I've already had markers in (7 I'm sure) not sure if it will be similar to that. The radiologist said my boob is worth a fortune

Oh I'll find out about bras from my nurse then. I agree more than one will be needed! What area are you? I did mention bras to my nurse the other day and she said she'll be going over everything with me soon. 

Haha I have a single marker already so I guess your boob is worth more than mine lol!

Sounds like your nurse will have it covered.

I'm in Basingstoke in Hampshire. Where are you? Xx

I'm in Lanarkshire, Scotland  so the other end of the country. 

I'll let you know tomorrow night what it's like. Xx

Hi Positive T

Thank you, I think it’s a bit of a long road getting the reduction instead of a lumpectomy but since I wasn’t happy with my size anyway it was a no brainer. 

I had the 43mm tumour and a smaller lesion close to it which was going to get removed at same time but turned out to be benign. As the surgeon said having big boobs made it easier to get clear margins ( think if it hadn’t grown it would’ve been just one op) 

Best wishes for your op.x

Haha yes couldn't get much further apart!

Good luck tomorrow lovely xx

Thank you. 

My surgeon went straight in with the reduction and I wasn't about to argue lol. I have big boobs (34F) and they need to take quite a large area (whole of upper left quadrant including my nipple) so would have been super wonky without the bilateral reduction.

I'm hoping with more tissue clear margins might be easier like you said so fingers crossed!!!

Are you having to have any further treatment once recovered from the surgery?

Xx

Thank you. 

My surgeon went straight in with the reduction and I wasn't about to argue lol. I have big boobs (34F) and they need to take quite a large area (whole of upper left quadrant including my nipple) so would have been super wonky without the bilateral reduction.

I'm hoping with more tissue clear margins might be easier like you said so fingers crossed!!!

Are you having to have any further treatment once recovered from the surgery?

Xx

I was the same, as soon as I heard the words mammoplasty I was smiling under the face mask. She said I'll let you think about it but I think I know the answer. My partner was just looking bewildered as he hadn't realised what she meant.  The surgeon also explained that having less tissue would mean radiotherapy would work better and possibly cut down on recurrence risks. Makes sense to me. 

Further treatment was to be radiotherapy to breast and hormone therapy as hormone +ve, her2 -ve.  Due to grade 3 and very tiny cells in 1/4 sentinel nodes following surgery they have organised an Oncotype test to see if there would be any benefit to having chemo. Fingers crossed there would be no benefit as it's the one thing I didn't want to happen. I'll know more on 15th March.

I've learned so much from this site since I was diagnosed in November,  still can't quite believe it's happening mind you.  Positive thoughts though & we'll all get through it. x

I really hope you get the right result from your oncotype test and don't have to go through chemo. But either way....you've got this.

I haven't been told anything about hormone positive/negative yet. Perhaps after the biopsy on everything that is removed?!?

It's such a journey isn't it. Not one we want to be on but am sure we will get to the final destination!

Stay strong xx

You'll get some pathology info after the biopsy but all of the info after your surgery. As I said mine was 22mm to begin with then 43mm after removal.  That concerned me a bit but it's still a stage 2 cancer & considered to be caught early. Mine is lobular, less common than ductal & no obvious lump.

Thank you, I'm praying just radiotherapy & hormone therapy.  You're right we've got this and will get there. x

Hi,

I have Pleomorphic Lobular Carcinoma InSitu, is that what you have? I've had one lumpectomy, then had to have haematoma evacuation 6 days later which was very scary! Lumpectomy results yesterday and margins aren't clear so unfortunately I have to have a second excision on 4th April. I'm gutted they have to go in again. I'm thinking if they don't get it all this time I'll have a mastectomy. Recovery has been really challenging and I still can't wear a crop top, sports bra or soft cup bra for any longer than a couple of hours. Intense itching, needle stabbing and feeling that all fabric that touches the nipple is chafing. 
My sons seem to think I should be ecstatic as it's still non invasive and don't understand why this has got me down. Daughter is more understanding and husband is supportive understanding my frustration as this impacts in our life together.

Really lovely to see the interaction and mutual support on this thread and to know we experience similar things xx

Hi there

I have invasive lobular cancer, grade 3, stage 2 . Not sure if stage 2a or 2b as although there were a few cells in 1/4  sentinel nodes the report says negative lymph involvement.  I really didn't expect a second op either as surgeon had removed lots of tissue (660 grams in each breast ) the first time. The second op was much quicker though. 

I understand how you're feeling, I initially had stinging, throbbing pain. Now I'm at the intense itching, numb in some areas stage. I'm also leaking from the incisions as they heal and going from soft cotton bras to cotton crop tops at night. I only just tried to stop putting dressings onto the breast creases as of today to see if that helps with the itching. I can still only sleep on my back which isn't my normal sleeping position but I'm still glad I got the reduction as it will be great once it all settles. No-one really explains how long it will take to heal. The breast nurse said 3-4 weeks but I'm now 8 weeks since my first main surgery and I'm nowhere near back to normal.

I think we just need to be patient and know that the tumours are being dealt with.  I find waiting on results and upcoming appointments difficult. It's not nice that we all have to go through this but good to know there is support out there from others in the same boat. 

I wish you well for your 2nd op and hope you get clear margins this time. X

Ps great to hear everything went well with your surgery PositiveT,  all the best for your healing. X

Thank you so much! Xx