Hi, I'm afraid I'm in a similar situation myself. I too have endometriosis and they left me once covid began despite telling me they were going to drain the ovarian cysts. I rang and was told all was ok. I lost my dad to covid and the stress was too much and I found myself bleeding from behind. I had a colonoscopy a year later as we couldn't go any sooner. I had a simpl polyps 

I'm now told it's 6 cm and he hasn't taken a biopsy but came in and told me it was cancerous and I needed a scan to see if it's spread. I said how do you know. He left the room and I haven't heard anything since from him but I had a scan

the first hospital said all was ok but I would need them drained and this hospital says it's definite but with no tests

very worried and confused.

despite this I want you to know you can always message me if you are angry or just fed up. Be positive and I'm sure it will work out but I do understand your frustration 

Hi

You must be very angry not only at the NHS but also yourself. I know I would be. Sadly at the end of the day youre just a number, even in normal times, and the only person who is 100 responsibile for your health.. dare i say it, is you. 

The trouble is gyny stuff is just so damn embarrassing and yukky to have ot keep facing , most people given the choice would prefer not push themselves to the front of the queue for complete strangers to be staring and poking about in their ladies plumbing. 
Im shocked however that the fact you had atypical hyperplasia they didnt stress to you urgently enough that this is basically 'pre cancerous' and pushed the fact that even with hormone treatment or the coil etc if you failed to go through menopause within a set time and the hyperplasia subside you should be very worried, in fact worried enough for them to do a hysterectomy.
I have had polyps, 3 of, since 2017, Im now 54 and the last one was removed last week and my womb lining is showing to be at what they describe as malignancy indicative thickness ie >>20mm 
I have had the latest polyp removed with LA hysteroscopy and womb lining biopies taken and am awaiting the results next week 
I have been pre warned that if the hyperplasia has progressed since my last polyp to be hyperplasia with atypical to either monitor every yrs with more biopies until a year ofter menopause ( no periods for a year) and see if it reduces back down to 5mm if not i shouuld have it all out, or if im not comfortable sitting it out , have it all out now and be done with it. 
The only bit of positive karma I can pass on sadly is that from reading up it all seems to be very slow growing in as far as uterine cancer goes and the fact you have had a coil as well it may have well sowed its progression even further. 

Good luck with going forward x take care 

I have always left my dignity at the door when it comes to my health and just "getting fixed"..  I've been prodded and probed down there by so many different people I don't care any more.  The surgeon said that the cells were pre-cancerous but never pushed for a hysterectomy despite me not wanting kids, nor did he mention any timeline for menopause and risk.

He did give me the hysterectomy option though but never emphasised how potentially serious this could be.  As it was such a big operation I hesitated on having one but had he said there was quite a big risk I would have said yes right off.

Too late now, no point in doing the "if onlys".  I will never trust the system again and will always now chase for follow ups to any further tests.

My biopsy is tomorrow then I have an MRI on the Saturday and a chest X-ray on the Monday.  I hope to God it's still Grade 1 and contained within my uterus :(

hi

just popping back to see how your scans and tests are going have they given you anymore answers etc? 
how are you finding the waiting times at the moment ? I know some are very frustrated about the wait between tests and result appointments.

anyway hope its all been less gloomy/serious than it initially looked.

take care x 

Biopsy, MRI and chest X-ray all done.  She did say the results may all be in by today so I'm hanging by the phone.  The waiting is just horrid.  SHe came to see me after the biopsy and I asked her what she saw with the camera and all she would say was "it looks like the diagnosis".  She didn't say if there were tumours, leisons or what - very frustrating.

I'm a bit annoyed that an MRI wasn't done before the biopsy, while I was waiting all that week.  Had I known that MRIs can tell you how far into the womb the cancer has grown I'd have asked for one BEFORE the biopsy, at least to get some immediate peace of mind?  I mean we already know the cancer is there we just don't know if it's gone up a grade or not.  But if the MRI had shown that it had grown into the uterus wall we'd know that it was probably at Grade 2.

HI 

sorry you are in such a horrible time of waiting, its so frustrating and the knowledge that 1 brief phone call changes entirely your future 
I had that day yesterday, it was tough.
Im hoping that all i have read about uterine cancers, although un forgivable, the error of missing you a year ago wont have made a terrific difference in severity, as they seem to be slow growing /developing.

Only the results will show what the extra time has done.
wishing you good luck and positive karma, no one deserves cancer but the fact you are having to go through this because diagnosis was missed its a double blow.

Hopefully they will put you on the VIP list and get you through this with flying colours 

take care and kind regards 

I hope you get good news x

I rang the surgeon's office as I'd not heard anything.  Her secretary rang back to say she was in a MDT meeting and she had the results through.  Then later the secretary rang agin and said the histology wasn't back yet but the MRI showed Stage 1a cancer that hasn't got out into the body.  There will be another meeting next Thursday when the histology results are back, but tomorrow a Surgical Clinical Nurse Specialist is calling me presumably to talk me through everything.  SO, massive relif that it's still contained in the uterus BUT I will only rest easy once I hear about the histology results.  I burst into tears on the phone and struggled to breathe.  Absolutely terrible having to wait for results like this but a little weight is now off my shoulders :(

I am so pleased 1a is the minimum and youd resigned yourself to a hysterectomy anyway. Get that over and you can know nothing is happening there ever again. Im so pleased for you that its the best case scenario you could hope for. 

All my pathology came back clear last night,  not even any atypical cells in the lining and the polyp.... was just another polyp.  

My gyny basically said hecwas shocked, i tick 6 of the 8 at risk boxes, im nearly 55 and showing no signs of going through menopause hes a bit baffled. 

Good luck with the next step. Ill keep sending good karma your way x

Thank you and fingers crossed the hysto goes smoothly.  If you are at risk have you not thought about a hysto too, for peace of mind?

Well I had the hysterectomy a week ago and all went well.  Now awaiting the results of the biopsies of everything they removed.  They didn't take any lymph nodes which I was super relived about, and as yet I've had no hot flushes which is a bonus and long may that continue.  Fingers crossed the biopsy still shows everything was still at Grade 1a.