Hi got my results back today I have been diagnosed with invasive lobular breast cancer. I have to have MRI scan to find out the size . Anyone else had to do this .
A couple of years ago, I was diagnosed with lobular breast cancer. I was sent for an MRI scan but my surgeon couldn't understand why, because I had already opted for a full mastectomy. He explained that a MRI scan is necessary where a patient wanted a lumpectomy because the lobular tumour is much harder to measure by other methods. Apparently it doesn't form a lump which is easily measured, it is more like a sheet of cancerous cells that spreads in the lobes of the breast. Realising I'd had the scan unnecessarily annoyed me somewhat as I found the MRI scan the worst of all the scans, not painful but annoying., He later said it was a good job I had opted for the mastectomy because my tumour was larger than he expected at 4cm..
Good luck with everything, just for your further info, I am now doing absolutely fine and, apparently, cancer free!
I just had the mastectomy followed a month later by lymph node clearance, because my surgeon thought he had felt something in the sentinel nodes taken at the same time as the mastectomy. He had been mistaken as there was no sign of cancer in the nodes he stripped.
As I had a mastectomy there was no need to have rads and he said that because I was over 70 he didn't think I would benefit from chemo (Yay!)
I take the hormone therapy, because my cancer was oestrogen positive, which hasn't caused half the problems we are told about, but I refused the bone thickening bisphosphonates because on the NHS Prognostic Index it only offered an extra one percent probability of me living for ten years after diagnosis.
I have to say that my attitude to the whole cancer thing is one of acceptance, only because you see things differently the older you get but I can understand how someone much younger will have more worries and fears. Good luck, it won't be as bad as you are anticipating.
I just had the mastectomy followed a month later by lymph node clearance, because my surgeon thought he had felt something in the sentinel nodes taken at the same time as the mastectomy. He had been mistaken as there was no sign of cancer in the nodes he stripped.
As I had a mastectomy there was no need to have rads and he said that because I was over 70 he didn't think I would benefit from chemo (Yay!)
I take the hormone therapy, because my cancer was oestrogen positive, which hasn't caused half the problems we are told about, but I refused the bone thickening bisphosphonates because on the NHS Prognostic Index it only offered an extra one percent probability of me living for ten years after diagnosis.
I have to say that my attitude to the whole cancer thing is one of acceptance, only because you see things differently the older you get but I can understand how someone much younger will have more worries and fears. Good luck, it won't be as bad as you are anticipating.
