Totally lost

Hello

I was diagnosed with bowel cancer early December. I’ve been told that this is a secondary cancer and they have to find the primary site, possibly stomach. I’ve had a colonoscopy and a CT scan, the consultant wanted to do an endoscopy, which hasn’t happened yet. My problem is that I moved house the week before Christmas and I’m now in a different health trust. Since diagnosis I’ve had no real information from either my former health trust or the new one. My new GP has made the required referral to the new hospital.  I know Christmas has caused delays but I feel absolutely lost not knowing what’s happening. My family are supportive and I’m trying to stay positive, but I cannot answer their questions because no one has told me what’s happening. My new GP is lovely but has warned me what I’m facing is serious. I don’t want to make a fuss and be a nuisance but not knowing is just awful. Truth is, I’m scared. Is anyone else in a similar  quandary?  This all started much earlier this year and during that time I have not seen a consultant until the colonoscopy in November. It’s been telephone consultations only. What I want to know is are these delays the norm?  Sorry this is such a long post!

 

Parents
  • I have just had major surgery lm two weeks post op. 

    I totally understand what you are going through, it’s like torture waiting for scans, results, appointments it goes on and on, l started to fall apart, my biggest worry was the cancer spreading, l do believe mine spread due to the long wait between biopsy’s scans....!!!

     I remember phoning a few times and I managed to get a few things organsed, so I would definitely push yourself, even more so as you’ve moved to a different area. 

    The holiday is over now so you can start arranging and get the ball rolling. I’m sending all my very best wishes for what lies ahead.

    Tara

  • Thank you Tara. I’m inclined to agree with you that I need to be more proactive now (just been reading my horoscope). If I had been more assertive earlier this year things wouldn’t have progressed so far so fast. It really helps hearing other people’s experiences. I’ve never joined any kind of forum before and this has been a revelation.

    Hope everything goes well, I shall be thinking of you. Xx

  • Hi

    so glad others have posted as I find reading everyone's posts can help. I hope you have moved somewhere nice as a nice is a big thing too! Let us all know how you get on. My next appointment is the 4th Jan waited 4 weeks to see if results have come back so fingers crossed Christmas hasn't delayed them. 
    Take care now 

  • Thank you so much, I’m amazed at how kind people are on this site. It really is helping me to be more positive knowing I am not alone going through this.

    my house move was quite challenging! Although I had help from family, doing it whilst coping with cancer brings a new level of stress. However, I’m here now and much closer to my daughter which is a huge comfort. Had I known before the sale about my cancer, I would have definitely pulled out. Luckily I didn’t know, moving was the right thing for me to do. 

    I wish you well on the 4th and will be thinking of you. Xx

  • Hi

    aww that's good your bear your daughter. Thanks you I have everything crossed for 4th but if I have to have chemo I know I'm not alone.

    Take care

    xx

     

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