I have just had major surgery lm two weeks post op. 

I totally understand what you are going through, it’s like torture waiting for scans, results, appointments it goes on and on, l started to fall apart, my biggest worry was the cancer spreading, l do believe mine spread due to the long wait between biopsy’s scans....!!!

 I remember phoning a few times and I managed to get a few things organsed, so I would definitely push yourself, even more so as you’ve moved to a different area. 

The holiday is over now so you can start arranging and get the ball rolling. I’m sending all my very best wishes for what lies ahead.

Tara

Thank you Tara. I’m inclined to agree with you that I need to be more proactive now (just been reading my horoscope). If I had been more assertive earlier this year things wouldn’t have progressed so far so fast. It really helps hearing other people’s experiences. I’ve never joined any kind of forum before and this has been a revelation.

Hope everything goes well, I shall be thinking of you. Xx

Hi

so glad others have posted as I find reading everyone's posts can help. I hope you have moved somewhere nice as a nice is a big thing too! Let us all know how you get on. My next appointment is the 4th Jan waited 4 weeks to see if results have come back so fingers crossed Christmas hasn't delayed them. 
Take care now 

Thank you so much, I’m amazed at how kind people are on this site. It really is helping me to be more positive knowing I am not alone going through this.

my house move was quite challenging! Although I had help from family, doing it whilst coping with cancer brings a new level of stress. However, I’m here now and much closer to my daughter which is a huge comfort. Had I known before the sale about my cancer, I would have definitely pulled out. Luckily I didn’t know, moving was the right thing for me to do. 

I wish you well on the 4th and will be thinking of you. Xx

Thank you so much, I’m amazed at how kind people are on this site. It really is helping me to be more positive knowing I am not alone going through this.

my house move was quite challenging! Although I had help from family, doing it whilst coping with cancer brings a new level of stress. However, I’m here now and much closer to my daughter which is a huge comfort. Had I known before the sale about my cancer, I would have definitely pulled out. Luckily I didn’t know, moving was the right thing for me to do. 

I wish you well on the 4th and will be thinking of you. Xx

Hi

aww that's good your bear your daughter. Thanks you I have everything crossed for 4th but if I have to have chemo I know I'm not alone.

Take care

xx

So sorry to hear that Caroleann. I have had delays, biggest one was GP which was initially dismissed in June then saw an online thread with someone with similar symptoms then diagnosed with advanced breast cancer and I messaged back on 4th November. Thankfully this time got a female GP who said that will be cancer, referring you today. 

What I found helps speed things up, and in your case if you are at stage 4, you absolutely should be a priority, is to phone the hospital. It took me 3 hours to get through first time but then instead of a 3 week wait due to delays I got seen in a week. Then I was given direct numbers. Seen on 12th for tests, mammo, ultrasound, biopsy, told that day definitely cancer and appointment for results on 19th which confirmed cancer so MRI and CT booked for next week and appointment for 3rd December for results when they said probably at stage 4 mets as in adrenals. Said new CT needed. 

Then I started hitting problems. The CT did not get booked so I phoned and chased, said 3 week wait, I pleaded and got Friday. Then they said could not see doctor only a phone appointment with a nurse for results in 2 weeks after that and then would book doctor and then 6 weeks before treatment starts if at stage 3 rather than stage 4. Would not even let me discuss with a doctor. At this point I complained via PALS and Chief Executive and suddenly scan results that day confirming stage 3, pre-op next day, surgery on Friday. 

They are overwhelmed atm and our hospital is 100% full and short staffed but cancer patients should not be left with delays especially advanced stage ones. I also have 2 kids at home who were distressed with all this and who need me to survive this. I now have had surgery and they said 2 week wait for results and given 4 but at least most of cancer is out now and was expecting 3 with Christmas but they implied was in lymph nodes. 

So would say phone, ask to go on cancellation list for appointments, hopefully once in system it will speed up. Glad you are closer to family. 

Thank you so much for the info. It’s awful to have to push so hard particularly when you’re at your lowest physical state. Again and again on this site the consensus is that you have to be proactive. I’m so glad to hear that it has helped you. Your children need you, keep pushing!  I’m thinking of you and sending positive vibes, please let me know how you get on xx

Thanks Caroleann. Hope you hear soon and keep us updated.